[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100579147":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":12,"centralContacts":16,"locations":27,"responsibleParty":44,"collaborators":10,"id":46,"slug":47,"hasResults":48,"nctId":49,"briefTitle":50,"officialTitle":51,"acronym":10,"eligibilityCriteria":52,"healthyVolunteers":48,"sex":53,"minAge":10,"maxAge":10,"enrollmentInfo":54,"targetDuration":10,"studyType":57,"phases":10,"briefSummary":58,"conditions":59,"keywords":69,"overallStatus":29,"whyStopped":10,"lastUpdateSubmitDate":76,"lastUpdatePostDateStruct":77,"startDateStruct":80,"completionDateStruct":82,"leadSponsor":84,"locationsCount":85},{"fullName":5,"class":6},"American Thrombosis and Hemostasis Network","NETWORK",[8],{"label":9,"type":10,"description":11,"interventionNames":10},"Blood Disorders",null,"The ATHNdataset is a large, robust real-world registry that can be queried to produce curated subsets of data to support clinical care, outcomes analysis, safety monitoring, practice of treatment, advocacy, public health reporting, quality improvement projects, and research initiatives. Initiatives relying on the ATHNdataset may focus on gaining a greater understanding of blood disorders, the complications of these disorders, their social and economic costs, and the effectiveness of treatments.\n\nThe population includes all individuals diagnosed with or suspected to have a blood disorder. Participants will contribute data gathered during care encounters with an ATHN Affiliate.",[13],{"name":14,"affiliation":5,"role":15},"Tammuella Chrisentery-Singleton, M.D.","PRINCIPAL_INVESTIGATOR",[17,23],{"name":18,"role":19,"phone":20,"phoneExt":21,"email":22},"Emily Callegari, RN","CONTACT","8003602846","124","ecallegari@athn.org",{"name":24,"role":19,"phone":20,"phoneExt":25,"email":26},"Carol Fedor, RN","122","cfedor@athn.org",[28],{"facility":5,"status":29,"city":30,"state":31,"zip":32,"country":33,"countryCode":34,"cosmosGeoPoint":35,"geoPoint":40,"contacts":41},"RECRUITING","Hickory","North Carolina","28601","United States","US",{"type":36,"coordinates":37},"Point",[38,39],-81.3412,35.73319,{"lat":39,"lon":38},[42],{"name":43,"role":19,"phone":10,"phoneExt":10,"email":26},"Carol Fedor, ND, RN",{"type":45,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100579147","athndataset-registry-100579147",false,"NCT06820515","ATHNdataset Registry","American Thrombosis and Hemostasis Network ATHNdataset Registry","Inclusion Criteria:\n\n* Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate.\n* Participants of any age.\n* Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent\n\nExclusion Criteria:\n\n* Any participant unable to provide consent or assent to participate in the ATHNdataset","ALL",{"count":55,"type":56},200000,"ESTIMATED","OBSERVATIONAL","The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems.\n\nDoctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.",[60,61,62,63,64,65,66,67,68],"Hemophilia","Thrombosis","Hemophilia A","Hemophilia B","Sickle Cell Disease","Glanzmann Thrombasthenia","Bleeding Disorder","Blood Disorder","Von Willebrand Diseases",[70,71,72,73,74,75],"bleed event","bleed treatments","adverse events","joint bleed","bleeding disorder","bleeding symptoms","2026-04-16",{"date":78,"type":79},"2026-04-21","ACTUAL",{"date":81,"type":79},"2024-10-25",{"date":83,"type":56},"2055-10-31",{"name":5,"class":6},1]