[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100436991":3},{"organization":4,"armGroups":7,"interventions":14,"overallOfficials":20,"centralContacts":24,"locations":35,"responsibleParty":52,"collaborators":10,"id":54,"slug":55,"hasResults":56,"nctId":57,"briefTitle":58,"officialTitle":59,"acronym":60,"eligibilityCriteria":61,"healthyVolunteers":56,"sex":62,"minAge":63,"maxAge":64,"enrollmentInfo":65,"targetDuration":10,"studyType":68,"phases":10,"briefSummary":69,"conditions":70,"keywords":72,"overallStatus":38,"whyStopped":10,"lastUpdateSubmitDate":76,"lastUpdatePostDateStruct":77,"startDateStruct":80,"completionDateStruct":82,"leadSponsor":84,"locationsCount":85},{"fullName":5,"class":6},"University Hospital, Toulouse","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":12},"Patients with Marfan syndrome or related syndromes",null,"Children aged at least 3 years old or adult with Marfan syndrome or related syndromes",[13],"Biological: collection of samples of blood and urine",[15],{"type":16,"name":17,"description":18,"armGroupLabels":19,"otherNames":10},"BIOLOGICAL","collection of samples of blood and urine","extra samples of blood and urine will be collected and stored for research utilisation",[9],[21],{"name":22,"affiliation":5,"role":23},"Thomas Edouard, MD","PRINCIPAL_INVESTIGATOR",[25,31],{"name":26,"role":27,"phone":28,"phoneExt":29,"email":30},"Thomas Edouard, MD, PhD","CONTACT","5 34 55 85 55","0033","edouard.t@chu-toulouse.fr",{"name":32,"role":27,"phone":33,"phoneExt":29,"email":34},"Françoise Auriol, PhD","5 67 77 10 95","auriol.f@chu-toulouse.fr",[36],{"facility":37,"status":38,"city":39,"state":10,"zip":40,"country":41,"countryCode":42,"cosmosGeoPoint":43,"geoPoint":48,"contacts":49},"Purpan University Hospital","RECRUITING","Toulouse","31059","France","FR",{"type":44,"coordinates":45},"Point",[46,47],1.44367,43.60426,{"lat":47,"lon":46},[50,51],{"name":26,"role":27,"phone":28,"phoneExt":29,"email":30},{"name":32,"role":27,"phone":33,"phoneExt":29,"email":34},{"type":53,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100436991","biological-collection-for-marfan-and-related-syndromes-100436991",false,"NCT04970459","Biological Collection for Marfan and Related Syndromes","Constitution of a Biological Collection to Study the Pathophysiology in Marfan Syndrome and Related Syndromes and to Identify Predictive Factors of Disease Progression","MARFANS","Inclusion Criteria:\n\n* Children aged at least 3 years old or adult with Marfan syndrome or related syndromes\n* Patients affiliated to or beneficiaries of a social security scheme\n* Patients able to receive information on the progress of the study and understand the information form to participate in the study. That implies to master the French language and not to be subject to a restriction of rights by the judicial authorities\n* Patients or legal representative who have given their consent to participate in the study (expression of no objection)\n\nExclusion Criteria:\n\n* Patients subject to a legal protection measure (guardianship, curators, or safeguard of justice)\n* Pregnant or breastfeeding women","ALL","3 Years","99 Years",{"count":66,"type":67},300,"ESTIMATED","OBSERVATIONAL","The present study will establish a collection of biological samples from Marfan patients or with associated diseases to be used for research purposes only, with due respect for confidentiality.",[71],"Marfan Syndrome",[73,74,75],"Biological collection","Marfan syndrome","Marfan associated syndromes","2026-03-16",{"date":78,"type":79},"2026-03-17","ACTUAL",{"date":81,"type":79},"2022-01-24",{"date":83,"type":67},"2031-08-07",{"name":5,"class":6},1]