[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100558680":3},{"organization":4,"armGroups":7,"interventions":7,"overallOfficials":8,"centralContacts":21,"locations":30,"responsibleParty":50,"collaborators":52,"id":57,"slug":58,"hasResults":59,"nctId":60,"briefTitle":61,"officialTitle":62,"acronym":7,"eligibilityCriteria":63,"healthyVolunteers":59,"sex":64,"minAge":7,"maxAge":7,"enrollmentInfo":65,"targetDuration":68,"studyType":69,"phases":7,"briefSummary":70,"conditions":71,"keywords":73,"overallStatus":32,"whyStopped":7,"lastUpdateSubmitDate":76,"lastUpdatePostDateStruct":77,"startDateStruct":80,"completionDateStruct":82,"leadSponsor":84,"locationsCount":85},{"fullName":5,"class":6},"Ann & Robert H Lurie Children's Hospital of Chicago","OTHER",null,[9,12,15,18],{"name":10,"affiliation":5,"role":11},"Debra E Weese-Mayer, MD","PRINCIPAL_INVESTIGATOR",{"name":13,"affiliation":14,"role":11},"Maxime Patout, MD","Groupe Hospitalier Pitie-Salpetriere",{"name":16,"affiliation":17,"role":11},"Martin Samuels, MD","Great Ormond Street Hospital-London (GOSH)",{"name":19,"affiliation":20,"role":11},"Christophe Delclaux, MD","Hopital Universitaire Robert-Debre",[22,27],{"name":23,"role":24,"phone":25,"phoneExt":7,"email":26},"Casey Rand, MSDS","CONTACT","312-227-3300","Crand@luriechildrens.org",{"name":28,"role":24,"phone":25,"phoneExt":7,"email":29},"Erin Lonergan, MS","ersmith@luriechildrens.org",[31],{"facility":5,"status":32,"city":33,"state":34,"zip":35,"country":36,"countryCode":37,"cosmosGeoPoint":38,"geoPoint":43,"contacts":44},"RECRUITING","Chicago","Illinois","60611","United States","US",{"type":39,"coordinates":40},"Point",[41,42],-87.65005,41.85003,{"lat":42,"lon":41},[45,47,49],{"name":46,"role":24,"phone":25,"phoneExt":7,"email":26},"Casey M Rand, MSDS",{"name":28,"role":24,"phone":25,"phoneExt":7,"email":48},"Ersmith@luriechildrens.org",{"name":10,"role":11,"phone":7,"phoneExt":7,"email":7},{"type":51,"investigatorFullName":7,"investigatorTitle":7,"investigatorAffiliation":7,"oldNameTitle":7,"oldOrganization":7},"SPONSOR",[53,54,56],{"name":14,"class":6},{"name":55,"class":6},"Great Ormond Street Hospital for Children NHS Foundation Trust",{"name":20,"class":6},"100558680","cchs-secure-health-hub-advancing-research-efforts-cchs-share-100558680",false,"NCT06554275","CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)","CCHS SHARE: A Multi-center Longitudinal Natural History Study","Inclusion Criteria:\n\nParticipants with a confirmed CCHS diagnosis (confirmed alveolar hypoventilation and PHOX2B mutation testing results), of all ages and genders, who are followed clinically.\n\nExclusion Criteria:\n\nAn unconfirmed diagnosis of CCHS or unconfirmed PHOX2B mutation or not followed clinically","ALL",{"count":66,"type":67},125,"ESTIMATED","15 Years","OBSERVATIONAL","The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD",[72],"Congenital Central Hypoventilation Syndrome",[74,75],"Natural History","Rare Disease","2025-07-11",{"date":78,"type":79},"2025-07-16","ACTUAL",{"date":81,"type":79},"2024-09-01",{"date":83,"type":67},"2028-08-31",{"name":5,"class":6},1]