[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100605669":3},{"organization":4,"armGroups":7,"interventions":19,"overallOfficials":27,"centralContacts":33,"locations":42,"responsibleParty":58,"collaborators":61,"id":66,"slug":67,"hasResults":68,"nctId":69,"briefTitle":70,"officialTitle":71,"acronym":72,"eligibilityCriteria":73,"healthyVolunteers":74,"sex":75,"minAge":76,"maxAge":11,"enrollmentInfo":77,"targetDuration":11,"studyType":80,"phases":81,"briefSummary":83,"conditions":84,"keywords":86,"overallStatus":92,"whyStopped":11,"lastUpdateSubmitDate":93,"lastUpdatePostDateStruct":94,"startDateStruct":97,"completionDateStruct":99,"leadSponsor":101,"locationsCount":102},{"fullName":5,"class":6},"Drexel University","OTHER",[8,14],{"label":9,"type":10,"description":11,"interventionNames":12},"Transformative and Restorative Engagement Circle (TREC)","EXPERIMENTAL",null,[13],"Behavioral: Transformative and Restorative Engagement Circle (TREC)",{"label":15,"type":16,"description":11,"interventionNames":17},"Stakeholder Engagement in quEstion Development and prioritization (SEED)","ACTIVE_COMPARATOR",[18],"Behavioral: Stakeholder Engagement in quEstion Development and prioritization (SEED)",[20,24],{"type":21,"name":9,"description":22,"armGroupLabels":23,"otherNames":11},"BEHAVIORAL","TREC will be co-developed in Phase 1, to focus on ensuring the presence of at least 3 key components: 1) a listening phase (focused on unconditionally hearing the experiences of autistic participants), 2) an acknowledgement phase (in which the experiences, including but not limited to harms and trauma, of autistic participants will be expressly addressed and acknowledged), 3) a negotiation\u002Fpriority-setting phase, in which participants will collaboratively identify goals for future CER.",[9],{"type":21,"name":15,"description":25,"armGroupLabels":26,"otherNames":11},"The SEED Method is a PCORI-supported multilevel stakeholder engagement model, using a participatory framework to develop stakeholder priorities. The core premise of SEED is creating a level playing field for stakeholders, wherein participants learn how to collaboratively identify their own community's priorities, and then refine them together. It involves convening participatory Topic Groups of stakeholders, assembled based on their experience and knowledge of the area of focus (in this case, autism and ABA). It also involves additional consultative stakeholder participants to fill in key gaps in representation; this element may or may not be present in thi SEED iteration, based on the CAC-led adaptation. SEED participants convene over a period of time (adapted to the needs of the specific group, and will be matched to the length of TREC here) to conceptualize (i.e., learn how to build a conceptual model and conduct exercises to do so), generate questions (i.e., review the conceptual m",[15],[28,31],{"name":29,"affiliation":5,"role":30},"Matthew D Lerner, PhD","PRINCIPAL_INVESTIGATOR",{"name":32,"affiliation":5,"role":30},"Dena L Gassner, PhD",[34,38],{"name":29,"role":35,"phone":36,"phoneExt":11,"email":37},"CONTACT","215-571-2181","matthew.lerner@drexel.edu",{"name":39,"role":35,"phone":40,"phoneExt":11,"email":41},"Calliana Faulk","215-571-3219","cf944@drexel.edu",[43],{"facility":44,"status":11,"city":45,"state":46,"zip":47,"country":48,"countryCode":49,"cosmosGeoPoint":50,"geoPoint":55,"contacts":56},"AJ Drexel Autism Institute","Philadelphia","Pennsylvania","19104","United States","US",{"type":51,"coordinates":52},"Point",[53,54],-75.16362,39.95238,{"lat":54,"lon":53},[57],{"name":39,"role":35,"phone":40,"phoneExt":11,"email":41},{"type":30,"investigatorFullName":59,"investigatorTitle":60,"investigatorAffiliation":5,"oldNameTitle":11,"oldOrganization":11},"Matthew Lerner","Associate Professor",[62,64],{"name":63,"class":6},"Patient-Centered Outcomes Research Institute",{"name":65,"class":6},"La Trobe University","100605669","centering-autistic-perspectives-in-behavioral-intervention-discussions-100605669",false,"NCT07165522","Centering Autistic Perspectives in Behavioral Intervention Discussions","Adapting and Testing a Novel Method of Engagement in Research: Centering Autistic Perspectives in Behavioral Intervention Discussions","CAPBID SoE","Inclusion Criteria:\n\n1. Adults over the age of 18\n2. Individuals who have had experience with Applied Behavior Analysis (ABA) at any time in their lives who is:\n\n   1. An Autistic individual who experienced Applied Behavior Analysis or\n   2. A practitioner who currently or previously was involved in the delivery of Applied Behavior Analysis\n3. Able to communicate fluently in English\n4. Individuals who do not report the endpoint values on the AAPS:\n\n   1. ABA should never be used for autistic people\n   2. ABA is the only evidence-based intervention for autism\n\nExclusion Criteria:\n\n1. Under the age of 18,\n2. Unable to communicate in English",true,"ALL","18 Years",{"count":78,"type":79},200,"ESTIMATED","INTERVENTIONAL",[82],"NA","The Centering Autistic Perspectives for Behavioral Interventions Discussions (CAPBID) PCORI Science of Engagement Award will examine different community engagement approaches for bringing together autistic people, Applied Behavioral Analysis (ABA) providers, and other members of the autism community to advance a shared equitable dialogue around research priorities for ABA-related research. One of these approaches will be based on existing transformative and restorative justice methods and frameworks. This project also utilizes a community-driven participatory research approach that will center autistic leadership in all aspects of the project.\n\nThe investigators hope that this research will pave the way for creating spaces where autistic people are heard in their experiences and can collaborate effectively with open-minded ABA providers about how to advance the next generation of care and research in the field. More broadly, the investigators aim to create engagement approaches that may be used to have conversations around critical and difficult issues faced by the autistic and autism communities, as well as other marginalized communities.",[85],"Autism",[85,87,88,89,90,91],"Applied Behavior Analysis","ABA","Community Based Participatory Research","Transformative and Restorative Justice","Engagement","NOT_YET_RECRUITING","2025-09-07",{"date":95,"type":96},"2025-09-10","ACTUAL",{"date":98,"type":79},"2026-03-15",{"date":100,"type":79},"2028-02-15",{"name":5,"class":6},1]