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People in the registry will not be obligated to join any of these additional studies, but if interested, can agree to be contacted if they may be eligible for a study.\n\nParticipants will:\n\n* Be asked to provide permission to collect information from their medical records, including things like demographic information, diagnosis information, family history, test results, treatment information, symptoms, complications, lifestyle and other relevant medical information.\n* Be asked study-related questions by phone or at a clinic visit.\n* Be asked study-related questions every year after enrollment for up to 10 years or until the study ends. A member of the study team will communicate with participants by phone or at clinic visits to collect information regarding any changes to their health over the previous year\u002Fs including new test results, treatment information, symptoms, and complications from HHT.",[390,391,392,393,394,395,396],"Hereditary Hemorrhagic Telangiectasia","Arteriovenous Malformations","Telangiectasia","Epistaxis","GastroIntestinal Bleeding","Cerebral Arteriovenous Malformations","Vascular Malformation","2025-06-10",{"date":399,"type":400},"2025-06-13","ACTUAL",{"date":402,"type":400},"2023-11-13",{"date":404,"type":385},"2033-11",{"name":5,"class":6},16]