[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100606961":3},{"organization":4,"armGroups":7,"interventions":14,"overallOfficials":19,"centralContacts":20,"locations":26,"responsibleParty":43,"collaborators":45,"id":48,"slug":49,"hasResults":50,"nctId":51,"briefTitle":52,"officialTitle":53,"acronym":54,"eligibilityCriteria":55,"healthyVolunteers":56,"sex":57,"minAge":58,"maxAge":19,"enrollmentInfo":59,"targetDuration":19,"studyType":62,"phases":63,"briefSummary":65,"conditions":66,"keywords":68,"overallStatus":72,"whyStopped":19,"lastUpdateSubmitDate":73,"lastUpdatePostDateStruct":74,"startDateStruct":77,"completionDateStruct":79,"leadSponsor":81,"locationsCount":82},{"fullName":5,"class":6},"New York University","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":12},"Dementia Care Management Checklist for Hospice Transitions","EXPERIMENTAL","The care management checklist will be administered to care partners by care managers during an outreach call to discuss the person with dementia's care and clinical needs. In this conversation, they will use the checklist to ask questions regarding care needs, decision-making considerations (healthcare proxy, etc), end-of-life dementia education, social and cultural needs, and potential care transitions.",[13],"Behavioral: Dementia Care Management Checklist for Hospice Transitions",[15],{"type":16,"name":9,"description":17,"armGroupLabels":18,"otherNames":19},"BEHAVIORAL","Intervention: After appropriate care partners of hospice-eligible PLWD are identified who will be receiving the checklist intervention, care managers will perform telephonic outreach to engage them in a conversation about care needs (as they would in typical clinical practice). The telephonic outreach will be followed up with a recommendation for follow up by a medical provider who may conduct a hospice care assessment and engage the care partner in decision-making surrounding the hospice referral and enrollment process.\n\nThis intervention was co-designed with care partners, home healthcare professionals, administrators, and medical providers. It is meant to be comprehensive and speak to the needs of all relevant parties engaged in the care of persons with dementia. It is developed so that it can be scaled and implemented widely.",[9],null,[21],{"name":22,"role":23,"phone":24,"phoneExt":19,"email":25},"Komal P Murali, PhD, RN, ACNP-BC","CONTACT","212-998-5783","kp47@nyu.edu",[27],{"facility":28,"status":19,"city":29,"state":29,"zip":30,"country":31,"countryCode":32,"cosmosGeoPoint":33,"geoPoint":38,"contacts":39},"NYU Rory Meyers College of Nursing and VNS Health","New York","10010","United States","US",{"type":34,"coordinates":35},"Point",[36,37],-74.00597,40.71427,{"lat":37,"lon":36},[40,41],{"name":22,"role":23,"phone":24,"phoneExt":19,"email":25},{"name":22,"role":42,"phone":19,"phoneExt":19,"email":19},"PRINCIPAL_INVESTIGATOR",{"type":44,"investigatorFullName":19,"investigatorTitle":19,"investigatorAffiliation":19,"oldNameTitle":19,"oldOrganization":19},"SPONSOR",[46],{"name":47,"class":6},"Visiting Nurse Service of New York","100606961","designing-care-management-for-hospice-transitions-for-persons-living-with-advanced-dementia-100606961",false,"NCT07182357","Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia","ENGAGE-D: Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia","ENGAGE-D","Inclusion:\n\nCare Partners and PLWD Dyad:\n\n1. Care partners of PLWD who have a diagnosis of moderate to severe dementia.\n2. Able to provide informed consent\n\nHHC Professionals:\n\nCare Managers and Field Nurses:\n\n1. Care managers who regularly engage hospice transitions with care partners of PLWD\n2. Age 18 or older\n\nMedical Providers:\n\n1. Medical providers (e.g., physicians and nurse practitioners) who refer patients for hospice enrollment.\n2. Age 18 or older\n\nHHC Administrators:\n\n1. Home healthcare administrators who work with the Certified Home Health Agency or the Advanced Illness Management Program that refers patients to hospice care\n2. Age 18 or older\n\nExclusion\n\nCare Partner and PLWD Dyad\n\n1. Under age 18\n2. Care partners who are caring for PLWD with Mild Cognitive Impairment\n3. PLWD with Mild Cognitive Impairment\n\nHHC Professionals: Care Managers, Medical Providers, Administrators\n\n1\\. Do not have experience managing hospice transitions for PLWD",true,"ALL","18 Years",{"count":60,"type":61},96,"ESTIMATED","INTERVENTIONAL",[64],"NA","This study will test a care management intervention to guide end-of-life care and hospice transitions for persons with dementia and their care partners receiving home healthcare and ascertain feasibility, acceptability, fidelity, and usability of a dementia care management hospice transitions checklist. This study will also examine hospice enrollment, time to enrollment, and care partner satisfaction with the intervention. The intervention will be delivered within usual care management within a large home healthcare agency.",[67],"Alzheimer Disease and Related Dementias",[69,70,71],"hospice care","care transitions","Alzheimer's disease and related dementias","NOT_YET_RECRUITING","2025-09-11",{"date":75,"type":76},"2025-09-19","ACTUAL",{"date":78,"type":61},"2025-10",{"date":80,"type":61},"2028-07-31",{"name":5,"class":6},1]