[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100065664":3},{"organization":4,"armGroups":7,"interventions":7,"overallOfficials":8,"centralContacts":17,"locations":23,"responsibleParty":45,"collaborators":7,"id":47,"slug":48,"hasResults":49,"nctId":50,"briefTitle":51,"officialTitle":51,"acronym":52,"eligibilityCriteria":53,"healthyVolunteers":49,"sex":54,"minAge":7,"maxAge":7,"enrollmentInfo":55,"targetDuration":7,"studyType":58,"phases":7,"briefSummary":59,"conditions":60,"keywords":63,"overallStatus":26,"whyStopped":7,"lastUpdateSubmitDate":65,"lastUpdatePostDateStruct":66,"startDateStruct":69,"completionDateStruct":71,"leadSponsor":73,"locationsCount":74},{"fullName":5,"class":6},"Northwell Health","OTHER",null,[9,13],{"name":10,"affiliation":11,"role":12},"Adrianna Vlachos, MD","Cohen Children's Medical Center of NY\u002FFeinstein Institutute for Medical Research","PRINCIPAL_INVESTIGATOR",{"name":14,"affiliation":15,"role":16},"Jeffrey M Lipton, MD, PhD","Cohen Children's Medical Center of NY\u002FFeinstein Institute for Medical Research","STUDY_CHAIR",[18],{"name":19,"role":20,"phone":21,"phoneExt":7,"email":22},"Eva Atsidaftos, MA","CONTACT","718-470-5523","eatsidaf@northwell.edu",[24],{"facility":25,"status":26,"city":27,"state":28,"zip":29,"country":30,"countryCode":31,"cosmosGeoPoint":32,"geoPoint":37,"contacts":38},"Cohen Children's Medical Center of NY","RECRUITING","New Hyde Park","New York","11040","United States","US",{"type":33,"coordinates":34},"Point",[35,36],-73.68791,40.7351,{"lat":36,"lon":35},[39,41,43],{"name":19,"role":20,"phone":40,"phoneExt":7,"email":22},"518-562-1504",{"name":42,"role":12,"phone":7,"phoneExt":7,"email":7},"Jeffey M Lipton, MD, PhD",{"name":10,"role":44,"phone":7,"phoneExt":7,"email":7},"SUB_INVESTIGATOR",{"type":12,"investigatorFullName":10,"investigatorTitle":46,"investigatorAffiliation":5,"oldNameTitle":7,"oldOrganization":7},"Director","100065664","diamond-blackfan-anemia-registry-dbar-100065664",false,"NCT00106015","Diamond Blackfan Anemia Registry (DBAR)","DBAR","Inclusion Criteria:\n\n* Patients must meet the diagnostic criteria for DBA which include the following:\n\n  1. Normochromic, usually macrocytic and occasionally normocytic anemia developing early in childhood\n  2. Reticulocytopenia\n  3. Normocellular bone marrow with a selective deficiency of red cell precursors\n  4. Normal or slightly decreased leukocyte count\n  5. Normal or often increased platelet count\n  6. Or, a confirmed mutation in one of the identified DBA genes\n\nExclusion Criteria:\n\n* Any subject identified as having another bone marrow failure syndrome (eg. Fanconi anemia, dyskeratosis congenita, Shwachman Diamond syndrome, etc.) will be excluded.","ALL",{"count":56,"type":57},900,"ESTIMATED","OBSERVATIONAL","The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).",[61,62],"Anemia","Blood Disease",[64],"inherited pure red cell aplasia","2026-04-13",{"date":67,"type":68},"2026-04-16","ACTUAL",{"date":70,"type":68},"2004-09",{"date":72,"type":57},"2030-04",{"name":5,"class":6},1]