[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100592732":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":14,"centralContacts":19,"locations":10,"responsibleParty":25,"collaborators":27,"id":34,"slug":35,"hasResults":36,"nctId":37,"briefTitle":38,"officialTitle":39,"acronym":40,"eligibilityCriteria":41,"healthyVolunteers":36,"sex":42,"minAge":43,"maxAge":10,"enrollmentInfo":44,"targetDuration":10,"studyType":47,"phases":10,"briefSummary":48,"conditions":49,"keywords":51,"overallStatus":56,"whyStopped":10,"lastUpdateSubmitDate":57,"lastUpdatePostDateStruct":58,"startDateStruct":61,"completionDateStruct":63,"leadSponsor":65,"locationsCount":10},{"fullName":5,"class":6},"University Hospital Southampton NHS Foundation Trust","OTHER",[8,12],{"label":9,"type":10,"description":11,"interventionNames":10},"Adults with learning disabilities, their carers and staff recruited from Hospital A",null,"Adults with a learning disability receiving inpatient care in the hospital site during the data collection period",{"label":13,"type":10,"description":11,"interventionNames":10},"Adults with learning disabilities their carers and staff recruited from Hospital B",[15],{"name":16,"affiliation":17,"role":18},"Joanna Hope, PhD","University of Southampton","PRINCIPAL_INVESTIGATOR",[20],{"name":21,"role":22,"phone":23,"phoneExt":10,"email":24},"Joanna L Hope, PhD","CONTACT","02380 595292","j.l.hope@soton.ac.uk",{"type":26,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR",[28,29,31],{"name":17,"class":6},{"name":30,"class":6},"University of West London",{"name":32,"class":33},"National Institute for Health Research, United Kingdom","OTHER_GOV","100592732","ethnography-of-hospital-care-for-adults-with-learning-disabilities-100592732",false,"NCT06997250","Ethnography of Hospital Care for Adults With Learning Disabilities","Improving the Care People With Learning Disabilities Receive in Hospital: an Ethnographic Study Examining the Experiences of People With Learning Disabilities and the Organisation and Delivery of Their Care","Care4Me","Inclusion Criteria:\n\n* Adults with a learning disability (over the age of 18)\n* Receiving inpatient care in the hospital site during the data collection period\n\nExclusion Criteria:\n\n* Children and young people with learning disabilities (under 18 years of age).\n* People living with other kinds of cognitive impairment (not learning disability) e.g. head injury\n* People not receiving inpatient care in the hospital sites during the recruitment period\n* Patients on the end-of-life care pathway at the point of recruitment into the study\n* Patients in intensive care units at the point of recruitment into the study","ALL","18 Years",{"count":45,"type":46},96,"ESTIMATED","OBSERVATIONAL","This study will:\n\n1. explore care experiences during a hospital admission from the perspectives of adults with learning disabilities (including people with profound learning disabilities) and their carers.\n2. Examine how care is organised and delivered for adults with learning disabilities during a hospital admission.\n3. Use the findings to co design guidance with people with learning disabilities, carers, and ward staff to improve care.\n\nThis study will follow the care of 8 adults with learning disabilities (including people with profound learning disabilities) during a hospital admission, in two hospitals in England. The researcher will use tailored communication to support people in sharing their experiences, including Talking Mats, Makaton and photos. The researcher will spend time with people with profound learning disabilities, learning how they communicate and carefully interpreting their non-verbal communications with their carers' support. The researcher will also talk to people's carers. The researcher will observe people's care, meetings about their care, talk to staff about their care, and read care notes (if the person agrees). The researcher will write this down and analyse it to learn how care could be improved.\n\nThe research team will work with people with learning disabilities, carers, and hospital staff to co design resources to improve ward care for people with learning disabilities. This will include:\n\n1. recommendations to the NHS on adapting ward care;\n2. a masterclass on ward care for participating hospitals;\n3. a briefing to the NHS in England and the Care Quality Commission on improving how ward care is checked and managed; and\n4. guidance and a toolkit on making co design more inclusive, including for people with profound learning disabilities.\n\nThe research team includes a person with a learning disability and a family carer, who will steer this project. The research team are working with people with learning disabilities and carers throughout our study to make sure it reflects their needs.",[50],"Learning Disability, Adult",[52,53,54,55],"Learning disabilities","Hospital care","Acute care","Ward care","NOT_YET_RECRUITING","2025-05-21",{"date":59,"type":60},"2025-05-30","ACTUAL",{"date":62,"type":46},"2025-06",{"date":64,"type":46},"2025-09-30",{"name":5,"class":6}]