[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100633510":3},{"organization":4,"armGroups":7,"interventions":8,"overallOfficials":7,"centralContacts":12,"locations":18,"responsibleParty":36,"collaborators":7,"id":38,"slug":39,"hasResults":40,"nctId":41,"briefTitle":42,"officialTitle":42,"acronym":43,"eligibilityCriteria":44,"healthyVolunteers":40,"sex":45,"minAge":46,"maxAge":47,"enrollmentInfo":48,"targetDuration":7,"studyType":51,"phases":7,"briefSummary":52,"conditions":53,"keywords":7,"overallStatus":21,"whyStopped":7,"lastUpdateSubmitDate":55,"lastUpdatePostDateStruct":56,"startDateStruct":59,"completionDateStruct":61,"leadSponsor":63,"locationsCount":64},{"fullName":5,"class":6},"Imagine Institute","OTHER",null,[9],{"type":6,"name":10,"description":11,"armGroupLabels":7,"otherNames":7},"survey","Patients take part in a survey, completing a form in less than 30 minutes",[13],{"name":14,"role":15,"phone":16,"phoneExt":7,"email":17},"Fatima clinical project manager, Medical doctor","CONTACT","+33 (0)1 42 75 45 65","recherche-clinique@institutimagine.org",[19],{"facility":20,"status":21,"city":22,"state":23,"zip":24,"country":25,"countryCode":26,"cosmosGeoPoint":27,"geoPoint":32,"contacts":33},"Imagine Clinical Research","RECRUITING","Paris","Île-de-France Region","75015","France","FR",{"type":28,"coordinates":29},"Point",[30,31],2.3488,48.85341,{"lat":31,"lon":30},[34],{"name":35,"role":15,"phone":16,"phoneExt":7,"email":17},"Fatima MADANI ALAOUI, Medical Doctor",{"type":37,"investigatorFullName":7,"investigatorTitle":7,"investigatorAffiliation":7,"oldNameTitle":7,"oldOrganization":7},"SPONSOR","100633510","evaluation-of-socio-professional-inclusion-for-young-adults-aged-15-25-living-with-a-rare-genetic-disability-100633510",false,"NCT07527624","Evaluation of Socio-professional Inclusion for Young Adults Aged 15-25 Living With a Rare Genetic Disability","ImagineLaSuite","Inclusion Criteria:\n\n* Current age 15-25 years born between 1997 and 2007\n* Rare genetic disease confirmed by a genetic test, originating in childhood and followed at Necker in the networks of the following disease reference centers:\n\n  * epilepsy without deficiency ;\n  * genodermatosis ;\n  * constitutional bone diseases ;\n  * craniofacial malformations;\n  * deafness;\n\nExclusion Criteria:\n\n* Patient or parent's opposition to study participation\n* Patient with intellectual disability (IQ \\\u003C 70)\n* Patients with pathologies involving intellectual disability and patients with a clinical sign of intellectual disability.","ALL","15 Years","25 Years",{"count":49,"type":50},300,"ESTIMATED","OBSERVATIONAL","Rare diseases are often synonymous with difficulties for sufferers, whether physical, mental or social. Patients suffering from rare diseases face specific problems, such as the long wait for a diagnosis, the geographical distance between the rare disease reference center and home, and the isolation created by this very disabling disease... Children suffering from rare genetic diseases have difficulty accessing higher education, but above all in finding an internship or work-study placement, due to the rarity of their disability.\n\nThe aim of this study, entitled \"Imagine La Suite\", is to assess the difficulties encountered by young people with rare genetic diseases and disabilities in their search for vocational and university training or employment.",[54],"Rare Diseases","2026-04-07",{"date":57,"type":58},"2026-04-14","ACTUAL",{"date":60,"type":58},"2024-01-08",{"date":62,"type":50},"2026-08-08",{"name":5,"class":6},1]