[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100586207":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":12,"centralContacts":16,"locations":10,"responsibleParty":22,"collaborators":10,"id":26,"slug":27,"hasResults":28,"nctId":29,"briefTitle":30,"officialTitle":31,"acronym":10,"eligibilityCriteria":32,"healthyVolunteers":28,"sex":33,"minAge":34,"maxAge":10,"enrollmentInfo":35,"targetDuration":38,"studyType":39,"phases":10,"briefSummary":40,"conditions":41,"keywords":44,"overallStatus":50,"whyStopped":10,"lastUpdateSubmitDate":51,"lastUpdatePostDateStruct":52,"startDateStruct":55,"completionDateStruct":57,"leadSponsor":59,"locationsCount":10},{"fullName":5,"class":6},"Universitat de Lleida","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":10},"Cerebral Palsy caregivers",null,"Quantitative data will be collected and analysed using three questionnaires, providing the authors with a comprehensive profile of participants' stress levels, quality of life, and caregiver burden. This data will also enable the identification of specific subgroups that will be the primary focus of the subsequent qualitative phase, while informing the development of new research questions for a deeper exploration during this phase. Participants who meet the inclusion criteria and have signed the informed consent will be directed to a study homepage hosted on the university's website. This website will provide a link to REDCap (Research Electronic Data Capture), a secure platform specifically designed for collecting research data (PedsQL-FIM, ZBI, PSS-14).",[13],{"name":14,"affiliation":5,"role":15},"Francesc Valenzuela, PhD","STUDY_DIRECTOR",[17],{"name":18,"role":19,"phone":20,"phoneExt":10,"email":21},"CLAUDIA ARUMI, Msc","CONTACT","+34630004767","claudia.arumi@udl.cat",{"type":23,"investigatorFullName":24,"investigatorTitle":25,"investigatorAffiliation":5,"oldNameTitle":10,"oldOrganization":10},"PRINCIPAL_INVESTIGATOR","Clàudia Arumí","Clàudia Arumí-Trujillo","100586207","experiences-outcomes-and-unmet-needs-of-caregivers-of-children-with-cerebral-palsy-100586207",false,"NCT06912373","Experiences, Outcomes and Unmet Needs of Caregivers of Children With Cerebral Palsy","Experiences, Outcomes and Unmet Needs of Caregivers of Children With Cerebral Palsy in Spain: A Mixed-Method Study","Inclusion Criteria:\n\n* \\>18 years old\n* Being a caregiver of a child with Cerebral Palsy\n* Spanish\u002FCatalan speaking\n* Willing to talk about their experiences and be audio\u002Fvideo-recorded.\n* Accept and sign the informed consent form","ALL","18 Years",{"count":36,"type":37},30,"ESTIMATED","1 Day","OBSERVATIONAL","Cerebral palsy (CP ) is one of the most prevalent motor disabilities in childhood, significantly impacting both children and their caregivers. This study explores the experiences, psychological well-being, and unmet needs of caregivers of children with CP. Using an explanatory sequential design (QUAN → QUAL), first it will be assessed burden, stress levels, and quality of life of caregivers through standardized questionnaires (PedsQL-FIM , ZBI , PSS-14 ).",[42,43],"Cerebral Palsy Infantile","Caregiver",[45,46,47,48,49],"Caregivers","Cerebral Palsy","Mixed-Method Research","Quality of Life","Parenting Stress","NOT_YET_RECRUITING","2025-03-30",{"date":53,"type":54},"2025-04-04","ACTUAL",{"date":56,"type":37},"2025-04-01",{"date":58,"type":37},"2025-08-01",{"name":5,"class":6}]