[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100457075":3},{"organization":4,"armGroups":7,"interventions":8,"overallOfficials":7,"centralContacts":13,"locations":24,"responsibleParty":43,"collaborators":7,"id":45,"slug":46,"hasResults":47,"nctId":48,"briefTitle":49,"officialTitle":50,"acronym":51,"eligibilityCriteria":52,"healthyVolunteers":47,"sex":53,"minAge":54,"maxAge":55,"enrollmentInfo":56,"targetDuration":59,"studyType":60,"phases":7,"briefSummary":61,"conditions":62,"keywords":7,"overallStatus":27,"whyStopped":7,"lastUpdateSubmitDate":64,"lastUpdatePostDateStruct":65,"startDateStruct":68,"completionDateStruct":70,"leadSponsor":72,"locationsCount":73},{"fullName":5,"class":6},"Fondation Ophtalmologique Adolphe de Rothschild","NETWORK",null,[9],{"type":10,"name":11,"description":12,"armGroupLabels":7,"otherNames":7},"OTHER","Recording of pathology-related information on the Wilson Register","Age, gender, date of diagnosis, clinical symptoms, ethnic charateristics and family tree will be collected and recorded on the Wilson Register during routine clinical care",[14,20],{"name":15,"role":16,"phone":17,"phoneExt":18,"email":19},"Aurélia Poujois, MD, PhD","CONTACT","(0)148036656","+33","apoujois@for.paris",{"name":21,"role":16,"phone":22,"phoneExt":18,"email":23},"Amélie Yavchitz, MD","(0)148036454","ayavchitz@for.paris",[25],{"facility":26,"status":27,"city":28,"state":29,"zip":30,"country":31,"countryCode":32,"cosmosGeoPoint":33,"geoPoint":38,"contacts":39},"Hôpital Fondation Adolphe de Rothschild","RECRUITING","Paris","Île-de-France Region","75019","France","FR",{"type":34,"coordinates":35},"Point",[36,37],2.3488,48.85341,{"lat":37,"lon":36},[40,41],{"name":15,"role":16,"phone":17,"phoneExt":18,"email":19},{"name":42,"role":16,"phone":22,"phoneExt":18,"email":23},"Amélie Yavchitz, MD, PhD",{"type":44,"investigatorFullName":7,"investigatorTitle":7,"investigatorAffiliation":7,"oldNameTitle":7,"oldOrganization":7},"SPONSOR","100457075","french-wilson-disease-registry-100457075",false,"NCT05231876","French Wilson Disease Registry","Registre Wilson France","WIL-FR","Inclusion Criteria:\n\n* All patients suffering from Wilson disease\n\nExclusion Criteria:\n\n* Lack of written consent from the patient or their legal representative","ALL","0 Years","99 Years",{"count":57,"type":58},1000,"ESTIMATED","20 Years","OBSERVATIONAL","This registry concerns adults and children with Wilson's disease. The collection of a large amount of data will allow a better understanding of the epidemiology of this rare disease, in particular the age of onset according to the hepatic or hepato-neurological forms, but also the geographical distribution of patients consulting in France. This database will also make it possible to know all the therapies prescribed to \"Wilsonian\" patients. The genetic study of these patients will make it possible to specify the various genetic mutations involved in Wilson's disease. The information (clinical, biological, radiological and genetic) relating to the disease will be entered by a doctor or a professional specialising in Wilson's disease.",[63],"Wilson Disease","2024-12-03",{"date":66,"type":67},"2024-12-05","ACTUAL",{"date":69,"type":67},"2005-01-01",{"date":71,"type":58},"2030-01-01",{"name":5,"class":6},1]