[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100296188":3},{"organization":4,"armGroups":7,"interventions":8,"overallOfficials":7,"centralContacts":13,"locations":22,"responsibleParty":39,"collaborators":43,"id":47,"slug":48,"hasResults":49,"nctId":50,"briefTitle":51,"officialTitle":52,"acronym":7,"eligibilityCriteria":53,"healthyVolunteers":49,"sex":54,"minAge":7,"maxAge":7,"enrollmentInfo":55,"targetDuration":58,"studyType":59,"phases":7,"briefSummary":60,"conditions":61,"keywords":7,"overallStatus":25,"whyStopped":7,"lastUpdateSubmitDate":63,"lastUpdatePostDateStruct":64,"startDateStruct":67,"completionDateStruct":69,"leadSponsor":71,"locationsCount":72},{"fullName":5,"class":6},"Ann & Robert H Lurie Children's Hospital of Chicago","OTHER",null,[9],{"type":10,"name":11,"description":12,"armGroupLabels":7,"otherNames":7},"GENETIC","ROHHAD","Suspected and Confirmed ROHHAD cases",[14,19],{"name":15,"role":16,"phone":17,"phoneExt":7,"email":18},"Casey Rand, BS","CONTACT","312.227.3300","Crand@LurieChildrens.org",{"name":20,"role":16,"phone":7,"phoneExt":7,"email":21},"Erin S Lonergan, BS","CAMP@LurieChildrens.org",[23],{"facility":24,"status":25,"city":26,"state":27,"zip":28,"country":29,"countryCode":30,"cosmosGeoPoint":31,"geoPoint":36,"contacts":37},"Ann & Robert H. Lurie Children's Hospital of Chicago and the Stanley Manne Children's Research Institute","RECRUITING","Chicago","Illinois","60611","United States","US",{"type":32,"coordinates":33},"Point",[34,35],-87.65005,41.85003,{"lat":35,"lon":34},[38],{"name":7,"role":16,"phone":17,"phoneExt":7,"email":21},{"type":40,"investigatorFullName":41,"investigatorTitle":42,"investigatorAffiliation":5,"oldNameTitle":7,"oldOrganization":7},"SPONSOR_INVESTIGATOR","Debra Weese-Mayer","Professor of Pediatric Autonomic Medicine, Northwestern University Feinberg School of Medicine Chief, Center for Autonomic Medicine in Pediatrics, Ann & Robert H. Lurie Children's Hospital of Chicago and Stanley Manne Children's Research Institute",[44],{"name":45,"class":46},"ROHHAD Fight Inc.","UNKNOWN","100296188","international-rapid-onset-obesity-with-hypothalamic-dysfunction-hypoventilation--autonomic-dysregulation-rohhad-registry-100296188",false,"NCT03135730","International Rapid-onset Obesity with Hypothalamic Dysfunction, Hypoventilation & Autonomic Dysregulation (ROHHAD) Registry","International Rapid-onset Obesity with Hypothalamic Dysfunction, Hypoventilation, and Autonomic Dysregulation (ROHHAD) REDCap Registry","Inclusion Criteria:\n\n* Clinical diagnosis of suspected ROHHAD\n* Clinical diagnosis of confirmed ROHHAD\n\nExclusion Criteria:\n\n* Clinical diagnosis not consistent with ROHHAD","ALL",{"count":56,"type":57},1000,"ESTIMATED","20 Years","OBSERVATIONAL","The Center for Autonomic Medicine in Pediatrics (CAMP) has collaborated with doctors from around the world to build the first International ROHHAD (Rapid-onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation) REDCap (Research Electronic Data Capture) Registry. This registry is an international collaboration with ROHHAD patients and their physicians recruited from around the world.\n\nThe purpose of this IRB-approved research study is to gain a better understanding of the various health problems ROHHAD patients face with advancing age, and how these relate to each patient's specific medical course. With a better understanding of specific ROHHAD and associated clinical manifestations, we will be able to better anticipate healthcare needs and to provide more accurate guidelines to healthcare providers world-wide in caring for patients with ROHHAD.\n\nThe study aims to obtain detailed phenotypic information (information about health and well-being) on patients with ROHHAD. Participation would require filling out a confidential survey that asks questions regarding health and past medical history. Involvement in the project is completely voluntary and there is no compensation for taking part. However, this project will help us learn more about this devastating disease, with the goal of advancing treatment.",[11,62],"Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation & Autonomic Dysregulation","2025-02-19",{"date":65,"type":66},"2025-02-20","ACTUAL",{"date":68,"type":66},"2013-06-01",{"date":70,"type":57},"2039-12-31",{"name":41,"class":6},1]