[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100621706":3},{"organization":4,"armGroups":7,"interventions":14,"overallOfficials":19,"centralContacts":24,"locations":33,"responsibleParty":52,"collaborators":54,"id":76,"slug":77,"hasResults":78,"nctId":79,"briefTitle":80,"officialTitle":81,"acronym":82,"eligibilityCriteria":83,"healthyVolunteers":78,"sex":84,"minAge":85,"maxAge":10,"enrollmentInfo":86,"targetDuration":10,"studyType":89,"phases":10,"briefSummary":90,"conditions":91,"keywords":104,"overallStatus":36,"whyStopped":10,"lastUpdateSubmitDate":114,"lastUpdatePostDateStruct":115,"startDateStruct":118,"completionDateStruct":120,"leadSponsor":122,"locationsCount":123},{"fullName":5,"class":6},"Myositis International Health & Research Collaborative Alliance Foundation","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":12},"Individuals living with a myositis disease",null,"Adults and children with a clinician diagnosis of an inflammatory myopathy (and optionally caregivers\u002Fpartners) will express their priorities and insights regarding regarding research priorities across myositis diseases.",[13],"Other: No intervention - qualitative and mixed methods investigations",[15],{"type":6,"name":16,"description":17,"armGroupLabels":18,"otherNames":10},"No intervention - qualitative and mixed methods investigations","No Intervention",[9],[20],{"name":21,"affiliation":22,"role":23},"Lesley Ann Saketkoo, MD, MPH","MIHRA Foundation","STUDY_CHAIR",[25,30],{"name":26,"role":27,"phone":28,"phoneExt":10,"email":29},"Lesley Ann Saketkoo, MD\u002FMPH","CONTACT","504 822 6653","info@MiHRAfoundation.org",{"name":31,"role":27,"phone":28,"phoneExt":10,"email":32},"Barbara Shafranski","info@MIHRAfoundation.org",[34],{"facility":35,"status":36,"city":37,"state":38,"zip":39,"country":40,"countryCode":41,"cosmosGeoPoint":42,"geoPoint":47,"contacts":48},"MIHRA Foundation - This is a GLOBAL STUDY","RECRUITING","New Orleans","Louisiana","70130","United States","US",{"type":43,"coordinates":44},"Point",[45,46],-90.07507,29.95465,{"lat":46,"lon":45},[49,51],{"name":21,"role":27,"phone":50,"phoneExt":10,"email":32},"504-822-6653",{"name":31,"role":27,"phone":28,"phoneExt":10,"email":32},{"type":53,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR",[55,58,60,62,64,66,68,70,72,74],{"name":56,"class":57},"MIHRA Patient Advisory","UNKNOWN",{"name":59,"class":57},"Myositis Australia",{"name":61,"class":57},"CureJM",{"name":63,"class":57},"The Myositis Association",{"name":65,"class":57},"The Dutch Myositis Association",{"name":67,"class":57},"The Swedish Myositis Association",{"name":69,"class":57},"Myositis UK",{"name":71,"class":57},"The German Myositis Association",{"name":73,"class":57},"CARRA - Childhood Arthritis & Rheumatology Research Alliance",{"name":75,"class":57},"PReS - Paediatric Rheumatology European Society","100621706","mihra---patient-rooted-insights-for-shaping-myositis-science-prisms-100621706",false,"NCT07374107","MIHRA - Patient-Rooted Insights for Shaping Myositis Science (PRISMS)","MIHRA - Patient-Rooted Insights for Shaping Myositis Science (PRISMS) - A Qualitative Study of Patient-voiced Research Priorities Across Rare Myositis Diseases","MIHRA-PRISMS","Inclusion Criteria:\n\n* Ability to provide informed consent\n* Have a clinician diagnosis of an idiopathic inflammatory myopathy or be a care partner or parent of a person living with an idiopathic inflammatory myopathy.\n* Participants who may have signed up through the MIHRA Patient Contact Registry https:\u002F\u002Fmihrafoundation.org\u002Fmihra-programs\u002Fmihra-patient-contact-registry\u002F\n\nExclusion Criteria:\n\n* Under the age of 7 years old\n* Do not have a diagnosis of an inflammatory myopathy","ALL","7 Years",{"count":87,"type":88},700,"ESTIMATED","OBSERVATIONAL","Myositis diseases are each rare diseases. As in other rare diseases, people living with myositis diseases face physical and psychosocial challenges that may not be recognized in current research priorities. The PRISMS study is a global investigation that collects patient perspectives through (mostly online) methods of open-ended questions, community forums and survey to identify the most pressing research concerns as identified by patients. Findings will be analyzed to create a patient-voiced set of research priorities that can guide the direction of research and help inform funding decisions across myositis diseases.\n\nPotential participants can express interest via https:\u002F\u002Fmihrafoundation.org\u002Fmihra-programs\u002Fmihra-patient-contact-registry\u002F",[92,93,94,95,96,97,98,99,100,101,102,103],"IBM","IIM","Myositis","Inflammatory Myopathy","Dermatomyositis","Dermatomyositis, Juvenile","Anti-synthetase Syndrome","Immune-Mediated Necrotizing Myopathy","Polymyositis","Inclusion Body Myositis","Juvenile Myositis","Juvenile Dermatomyositis",[105,106,107,108,109,110,111,112,113],"myositis","rare diseases","patient priorities","patient engagement","patient initiated","patient research partners","qualitative research","mixed methods research","research priorities","2026-01-20",{"date":116,"type":117},"2026-01-28","ACTUAL",{"date":119,"type":117},"2025-06-25",{"date":121,"type":88},"2030-12",{"name":5,"class":6},1]