[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100623230":3},{"organization":4,"armGroups":7,"interventions":8,"overallOfficials":12,"centralContacts":18,"locations":26,"responsibleParty":44,"collaborators":46,"id":66,"slug":67,"hasResults":68,"nctId":69,"briefTitle":70,"officialTitle":71,"acronym":7,"eligibilityCriteria":72,"healthyVolunteers":73,"sex":74,"minAge":75,"maxAge":7,"enrollmentInfo":76,"targetDuration":7,"studyType":79,"phases":7,"briefSummary":80,"conditions":81,"keywords":83,"overallStatus":94,"whyStopped":7,"lastUpdateSubmitDate":95,"lastUpdatePostDateStruct":96,"startDateStruct":99,"completionDateStruct":101,"leadSponsor":103,"locationsCount":104},{"fullName":5,"class":6},"University of Sheffield","OTHER",null,[9],{"type":6,"name":10,"description":11,"armGroupLabels":7,"otherNames":7},"Not applicable- observational study","MND-Together tool will be informed by the findings from this study",[13,16],{"name":14,"affiliation":5,"role":15},"Liam Knox, PhD","PRINCIPAL_INVESTIGATOR",{"name":17,"affiliation":5,"role":15},"Chris McDermott, MBChB, FRCP, PhD",[19,23],{"name":14,"role":20,"phone":21,"phoneExt":7,"email":22},"CONTACT","+441142222291","l.knox@sheffield.ac.uk",{"name":17,"role":20,"phone":24,"phoneExt":7,"email":25},"+44 1142222295","c.j.mcdermott@sheffield.ac.uk",[27],{"facility":28,"status":7,"city":29,"state":30,"zip":7,"country":31,"countryCode":32,"cosmosGeoPoint":33,"geoPoint":38,"contacts":39},"School of Medicine and Populational Health","Sheffield","Yorkshire","United Kingdom","UK",{"type":34,"coordinates":35},"Point",[36,37],-1.4659,53.38297,{"lat":37,"lon":36},[40,42],{"name":14,"role":20,"phone":41,"phoneExt":7,"email":22},"+44 1142222291",{"name":17,"role":20,"phone":43,"phoneExt":7,"email":25},"+44 114 222 2295",{"type":45,"investigatorFullName":7,"investigatorTitle":7,"investigatorAffiliation":7,"oldNameTitle":7,"oldOrganization":7},"SPONSOR",[47,50,52,54,57,59,62,64],{"name":48,"class":49},"National Institute for Health Research, United Kingdom","OTHER_GOV",{"name":51,"class":6},"Liverpool John Moores University",{"name":53,"class":6},"Sheffield Teaching Hospitals NHS Foundation Trust",{"name":55,"class":56},"Cornwall Partnership NHS Foundation Trust","NETWORK",{"name":58,"class":6},"Northern Lincolnshire and Goole Hospitals NHS Foundation Trust",{"name":60,"class":61},"Dementias Platform UK","UNKNOWN",{"name":63,"class":61},"NIHR HealthTech Research Centre",{"name":65,"class":6},"Swansea Bay University Health Board","100623230","mnd-together-phase-1-100623230",false,"NCT07393932","MND Together: Phase 1","MND Together: Improving Communication and Coordination of Motor Neuron Disease Care","WS1\n\nInclusion Criteria:\n\n* Person with MND, carers, former carers, Health and Social Care Professionals, managers and commissioners\n* Ability to engage in focus group or interview or email interview\n\nExclusion Criteria:\n\n* no exclusion criteria\n\nWS2\n\nInclusion Criteria:\n\n* Person with MND, carers, former carers, Health and Social Care Professionals, managers and commissioners\n* Ability to engage in an observations and interviews\n\nExclusion Criteria:\n\n* no exclusion criteria",true,"ALL","18 Years",{"count":77,"type":78},287,"ESTIMATED","OBSERVATIONAL","This project consists of two workstreams, both of which will be mixed-methods and aim to develop a national UK picture of current care coordination for people with MND, including observations of barriers and facilitators. The studies will explore how care is transferred and communicated across MND specialist services to non-specialist community health settings.\n\nIn workstream 1, the researchers will conduct focus groups with people with MND, Carers, former Carers, Health and Social Care Professionals and managers and commissioners. These focus groups, alongside the analysis of routine data, will create a national picture of MND care and begin a behavioural diagnosis of the barriers and facilitators. In workstream 2, a multi-site ethnography study will be conducted, including observations, interviews, routine data, care plan and document review. This Workstream will observe how care is coordinated between specialist and non-specialist services and continue to explore barriers and facilitators that can not be identified through interviews.",[82],"MND (Motor Neurone DIsease)",[84,85,86,87,88,89,90,91,92,93],"MND","Care coordination","health and social care","multidisciplinary care","community services","Motor Neurone Disease","Neurological conditions","ethnography","Amyotrophic lateral sclerosis (ALS)","Qualitative","NOT_YET_RECRUITING","2026-01-30",{"date":97,"type":98},"2026-02-06","ACTUAL",{"date":100,"type":78},"2026-02",{"date":102,"type":78},"2027-02",{"name":5,"class":6},1]