[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100404627":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":12,"centralContacts":16,"locations":25,"responsibleParty":56,"collaborators":10,"id":58,"slug":59,"hasResults":60,"nctId":61,"briefTitle":62,"officialTitle":63,"acronym":10,"eligibilityCriteria":64,"healthyVolunteers":60,"sex":65,"minAge":10,"maxAge":10,"enrollmentInfo":66,"targetDuration":69,"studyType":70,"phases":10,"briefSummary":71,"conditions":72,"keywords":75,"overallStatus":46,"whyStopped":10,"lastUpdateSubmitDate":81,"lastUpdatePostDateStruct":82,"startDateStruct":85,"completionDateStruct":87,"leadSponsor":89,"locationsCount":90},{"fullName":5,"class":6},"Memorial Sloan Kettering Cancer Center","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":10},"Neurocutaneous Melanocytosis",null,"Participants will have Neurocutaneous Melanocytosis (NCM) Including Cutaneous and CNS Involvement",[13],{"name":14,"affiliation":5,"role":15},"Yasmin Khakoo, MD","PRINCIPAL_INVESTIGATOR",[17,21],{"name":14,"role":18,"phone":19,"phoneExt":10,"email":20},"CONTACT","212-639-8292","khakooy@mskcc.org",{"name":22,"role":18,"phone":23,"phoneExt":10,"email":24},"Sofia Haque, MD","212-639-7170","haques@MSKCC.ORG",[26,44],{"facility":27,"status":28,"city":29,"state":30,"zip":31,"country":32,"countryCode":33,"cosmosGeoPoint":34,"geoPoint":39,"contacts":40},"Boston Children's Hospital (Data Analysis Only)","NOT_YET_RECRUITING","Boston","Massachusetts","02115","United States","US",{"type":35,"coordinates":36},"Point",[37,38],-71.05977,42.35843,{"lat":38,"lon":37},[41],{"name":42,"role":18,"phone":43,"phoneExt":10,"email":10},"Elena Hawryluk, MD","617-355-6117",{"facility":45,"status":46,"city":47,"state":47,"zip":48,"country":32,"countryCode":33,"cosmosGeoPoint":49,"geoPoint":53,"contacts":54},"Memorial Sloan Kettering Cancer Center (All Protocol Activities)","RECRUITING","New York","10065",{"type":35,"coordinates":50},[51,52],-74.00597,40.71427,{"lat":52,"lon":51},[55],{"name":14,"role":18,"phone":19,"phoneExt":10,"email":10},{"type":57,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100404627","neurocutaneous-melanocytosis-registry-100404627",false,"NCT04548817","Neurocutaneous Melanocytosis Registry","Prospective Registry of Patients With Neurocutaneous Melanocytosis (NCM) Including Cutaneous and CNS Involvement","Inclusion Criteria:\n\n* Patients with LCMN, defined as:\n\n  * Dark-colored patch of skin present at birth\n  * Can be located anywhere on the individual's skin\n  * May include satellite lesions\n  * May be associated with hypertrichosis\n\nOR, in absence of cutaneous involvement:\n\n* histologically or radiographically confirmed CNS melanocytosis.\n\n  * Any age at diagnosis.\n  * Signed informed consent by a patient, or parent\u002Flegal guardian.\n  * Deceased patients can be included provided that parent\u002Flegal guardian is contacted at least 6 months after the death of the child and not on the child's birthday or anniversary of death.\n\nPathology review at MSK is not mandatory to confirm the diagnosis of LCMN or NCM. We will not require pathology analysis of leptomeningeal deposits in patients where characteristic skin lesions are present and melanosis of the meninges is radiographically evident. However, if pathology samples have already been obtained as part of a patient's evaluation and treatment at another institution, tissue samples will be requested for review and confirmation of the diagnosis.\n\nExclusion Criteria:\n\n* Informed consent has not been provided.","ALL",{"count":67,"type":68},100,"ESTIMATED","7 Years","OBSERVATIONAL","This study will involve collecting information about the regular medical care you receive for large cutaneous melanocytic nevi (LCMN) or neurocutaneous melanocytosis (NCM).",[73,74,9],"Cutaneous Melanocytic Neoplasm","Large Cutaneous Melanocytic Nevi",[76,77,78,79,80,5],"large cutaneous melanocytic nevi","LCMN","neurocutaneous melanocytosis","NCM","20-363","2025-09-29",{"date":83,"type":84},"2025-09-30","ACTUAL",{"date":86,"type":84},"2020-09-03",{"date":88,"type":68},"2027-09-03",{"name":5,"class":6},2]