[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100532094":3},{"organization":4,"armGroups":7,"interventions":19,"overallOfficials":25,"centralContacts":29,"locations":34,"responsibleParty":50,"collaborators":18,"id":53,"slug":54,"hasResults":55,"nctId":56,"briefTitle":57,"officialTitle":57,"acronym":18,"eligibilityCriteria":58,"healthyVolunteers":55,"sex":59,"minAge":60,"maxAge":18,"enrollmentInfo":61,"targetDuration":18,"studyType":64,"phases":65,"briefSummary":67,"conditions":68,"keywords":71,"overallStatus":36,"whyStopped":18,"lastUpdateSubmitDate":75,"lastUpdatePostDateStruct":76,"startDateStruct":79,"completionDateStruct":81,"leadSponsor":83,"locationsCount":84},{"fullName":5,"class":6},"Seattle Children's Hospital","OTHER",[8,14],{"label":9,"type":10,"description":11,"interventionNames":12},"\"What Is Important to US\" Communication Intervention","EXPERIMENTAL","The \"What Is Important to Us\" intervention is a photo-narrative invention that prompts parents to select a total of 1-3 photos that are then displayed at their child's ICU bedside representing: 1) who is important in our family; 2) what strengthens us as parents; 3) how we know our child is feeling well; and 4) what makes our child's hospitalization easier. Parents are encouraged to discuss the pictures with clinicians caring for their child. Clinicians caring for the child are sent the photos electronically along with suggested discussion prompts to use with parents.",[13],"Behavioral: \"What Is Important to Us\" Communication Intervention",{"label":15,"type":16,"description":17,"interventionNames":18},"Usual Care","NO_INTERVENTION","Usual supportive care",null,[20],{"type":21,"name":22,"description":23,"armGroupLabels":24,"otherNames":18},"BEHAVIORAL","\"What Is Important to Us\" Communication Intervention","The \"What Is Important to Us\" intervention is a photo-narrative invention that prompts parents to select a total of 1-3 photos that are then displayed at their child's ICU bedside representing: 1) who is important in our family; 2) what strengthens us as parents; 3) how we know our child is feeling well; and 4) what makes our child's hospitalization easier. Parents are encouraged to discuss the pictures with clinicians caring for their child. Clinicians caring for the child are sent the photos electronically along with suggested discussion prompts to use with parents..",[9],[26],{"name":27,"affiliation":5,"role":28},"Jori Bogetz, MD","PRINCIPAL_INVESTIGATOR",[30],{"name":27,"role":31,"phone":32,"phoneExt":18,"email":33},"CONTACT","206-884-0572","jori.bogetz@seattlechildrens.org",[35],{"facility":5,"status":36,"city":37,"state":38,"zip":39,"country":40,"countryCode":41,"cosmosGeoPoint":42,"geoPoint":47,"contacts":48},"RECRUITING","Seattle","Washington","98105","United States","US",{"type":43,"coordinates":44},"Point",[45,46],-122.33207,47.60621,{"lat":46,"lon":45},[49],{"name":27,"role":31,"phone":18,"phoneExt":18,"email":33},{"type":28,"investigatorFullName":51,"investigatorTitle":52,"investigatorAffiliation":5,"oldNameTitle":18,"oldOrganization":18},"Jori Bogetz","Director, Research, Treuman Katz Center for Pediatric Bioethics and Palliative Care","100532094","phase-2-the-what-is-important-to-us-communication-intervention-pilot-clinical-trial-100532094",false,"NCT06208332","The \"What Is Important to Us\" Communication Intervention Pilot Clinical Trial","Children with SNI\n\nInclusion\n\n* Hospitalized at study sites\n* Ages 6 months through 25 years old\n* Has had SNI for \\>6 months, defined as permanent static or progressive central nervous system injury resulting in motor\u002Fcognitive impairment and medical complexity\n\nExclusion\n\n* Has never previously been home\u002Fdischarged\n* Has an expected hospital length of stay \\\u003C2 days\n* Has a life expectancy of \\\u003C4 weeks\n* Previous study participation\n\nParents\n\nInclusion\n\n* Parent\u002Flegally authorized representative of an eligible child with SNI\n* Preferred language of care English and\u002For Spanish\n\nClinicians\n\nInclusion -Licensed physicians, nurses, advanced practice providers, respiratory therapists at study site\n\nExclusion\n\n-Previous study participation","ALL","6 Months",{"count":62,"type":63},160,"ESTIMATED","INTERVENTIONAL",[66],"PHASE2","The objective of this study is to conduct a pilot randomized controlled trial (RCT) of a photo-narrative communication intervention developed by our study team with patients\u002Fparents of children with severe neurological impairment (SNI) and their pediatric intensive care unit (PICU) clinicians to assess feasibility, acceptability, and early efficacy.",[69,70],"Critical Illness","Neurologic Disorder",[72,73,74],"pediatric palliative care","communication","severe neurological impairment","2026-02-12",{"date":77,"type":78},"2026-02-18","ACTUAL",{"date":80,"type":78},"2025-02-10",{"date":82,"type":63},"2027-05-15",{"name":5,"class":6},1]