[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100372735":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":12,"centralContacts":16,"locations":25,"responsibleParty":45,"collaborators":10,"id":49,"slug":50,"hasResults":51,"nctId":52,"briefTitle":53,"officialTitle":54,"acronym":55,"eligibilityCriteria":56,"healthyVolunteers":57,"sex":58,"minAge":10,"maxAge":10,"enrollmentInfo":59,"targetDuration":62,"studyType":63,"phases":10,"briefSummary":64,"conditions":65,"keywords":67,"overallStatus":28,"whyStopped":10,"lastUpdateSubmitDate":72,"lastUpdatePostDateStruct":73,"startDateStruct":76,"completionDateStruct":78,"leadSponsor":80,"locationsCount":81},{"fullName":5,"class":6},"Istituto Ortopedico Rizzoli","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":10},"Ehlers-Danlos Syndrome patients",null,"The group comprises all patients affected by Ehlers-Danlos Syndrome, including prenatal and fetal diagnosis of Ehlers-Danlos Syndrome",[13],{"name":14,"affiliation":5,"role":15},"Luca Sangiorgi, MD, PhD, MS","PRINCIPAL_INVESTIGATOR",[17,22],{"name":18,"role":19,"phone":20,"phoneExt":10,"email":21},"Marina Mordenti, PhD","CONTACT","+39 05 6366062","registri.malattierare@ior.it",{"name":23,"role":19,"phone":24,"phoneExt":10,"email":21},"Marcella Lanza, PhD","+39 05 6366169",[26],{"facility":27,"status":28,"city":29,"state":30,"zip":31,"country":32,"countryCode":33,"cosmosGeoPoint":34,"geoPoint":39,"contacts":40},"Irccs Istituto Ortopedico Rizzoli","RECRUITING","Bologna","Emilia-Romagna","40136","Italy","IT",{"type":35,"coordinates":36},"Point",[37,38],11.33875,44.49381,{"lat":38,"lon":37},[41,43],{"name":18,"role":19,"phone":42,"phoneExt":10,"email":21},"+39 051 6366062",{"name":23,"role":19,"phone":44,"phoneExt":10,"email":21},"+39 051 6366169",{"type":46,"investigatorFullName":47,"investigatorTitle":48,"investigatorAffiliation":5,"oldNameTitle":10,"oldOrganization":10},"SPONSOR_INVESTIGATOR","Luca Sangiorgi","Head of Department of Rare Skeletal Disorders","100372735","registry-of-ehlers-danlos-syndrome-100372735",false,"NCT04133272","Registry of Ehlers-Danlos Syndrome","Registry of Ehlers-Danlos Syndrome That Collects Clinical, Functional, Genetic, Genealogical, Imaging, Surgical, Treatment, Quality of Life Data. Data Are Linked to Patients' Biological Samples, When Available","RED","Inclusion Criteria:\n\n* All Ehlers-Danlos Syndrome patients, including prenatal and fetal diagnosis of Ehlers-Danlos Syndrome\n\nExclusion Criteria:\n\n* Any condition unrelated to Ehlers-Danlos Syndrome",true,"ALL",{"count":60,"type":61},3000,"ESTIMATED","25 Years","OBSERVATIONAL","RED is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc.\n\nThis approach has been developed to corroborate and integrate data from different sources and evaluating several aspects of diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate disease pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.",[66],"Ehlers-Danlos Syndrome",[68,69,70,71],"Disease Registry","Natural History Study","Disease Evolution","Genotype-Phenotype Correlation","2025-11-17",{"date":74,"type":75},"2025-11-20","ACTUAL",{"date":77,"type":75},"2014-06",{"date":79,"type":61},"2033-01",{"name":47,"class":6},1]