[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100361767":3},{"organization":4,"armGroups":7,"interventions":14,"overallOfficials":20,"centralContacts":24,"locations":32,"responsibleParty":50,"collaborators":10,"id":52,"slug":53,"hasResults":54,"nctId":55,"briefTitle":56,"officialTitle":57,"acronym":10,"eligibilityCriteria":58,"healthyVolunteers":59,"sex":60,"minAge":61,"maxAge":10,"enrollmentInfo":62,"targetDuration":10,"studyType":65,"phases":10,"briefSummary":66,"conditions":67,"keywords":69,"overallStatus":34,"whyStopped":10,"lastUpdateSubmitDate":74,"lastUpdatePostDateStruct":75,"startDateStruct":78,"completionDateStruct":80,"leadSponsor":82,"locationsCount":83},{"fullName":5,"class":6},"Memorial Sloan Kettering Cancer Center","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":12},"Caregivers of Patients",null,"This is an observational study of informal caregivers (ICs) of patients with Erdheim-Chester Disease (ECD) and other histiocytic diseases. That will collect data cross-sectionally, at a single time point. Caregiver-reported data will be completed in the form of online surveys by the participants themselves using the Research Electronic Data Capture Platform \\[RedCAP\\] platform.",[13],"Behavioral: online surveys",[15],{"type":16,"name":17,"description":18,"armGroupLabels":19,"otherNames":10},"BEHAVIORAL","online surveys","Survey data about supportive care needs, mood, and the experience of IC's finding meaning and purpose in the caregiving experience.",[9],[21],{"name":22,"affiliation":5,"role":23},"Eli Diamond, MD","PRINCIPAL_INVESTIGATOR",[25,29],{"name":22,"role":26,"phone":27,"phoneExt":10,"email":28},"CONTACT","212-610-0243","diamone1@mskcc.org",{"name":30,"role":26,"phone":31,"phoneExt":10,"email":10},"Katherine Panageas, DRPH","646-888-8237",[33],{"facility":5,"status":34,"city":35,"state":35,"zip":36,"country":37,"countryCode":38,"cosmosGeoPoint":39,"geoPoint":44,"contacts":45},"RECRUITING","New York","10065","United States","US",{"type":40,"coordinates":41},"Point",[42,43],-74.00597,40.71427,{"lat":43,"lon":42},[46,47,49],{"name":22,"role":26,"phone":27,"phoneExt":10,"email":10},{"name":48,"role":26,"phone":31,"phoneExt":10,"email":10},"Katherine Panageas, DrPH",{"name":22,"role":23,"phone":10,"phoneExt":10,"email":10},{"type":51,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100361767","supportive-care-needs-of-caregivers-of-people-with-erdheim-chester-disease-and-other-histiocytic-diseases-100361767",false,"NCT03990428","Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases","A Study to Identify the Supportive Care Needs of Caregivers of Patients With Erdheim-Chester Disease and Other Histiocytic Diseases","Inclusion Criteria:\n\n* Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).\n* Proficiency to complete study assessments in English, evaluated at the time of consent.\n* Age 18 or over.\n\nExclusion Criteria:\n\n* Participant unwilling to sign consent.\n* Participant unable to complete web-based assessments.",true,"ALL","18 Years",{"count":63,"type":64},250,"ESTIMATED","OBSERVATIONAL","This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?",[68],"Supportive Care Needs of Caregivers",[70,71,72,73],"Supportive care","Erdheim-Chester Disease","Other Histiocytic Diseases","19-213","2026-07-01",{"date":76,"type":77},"2026-07-02","ACTUAL",{"date":79,"type":77},"2019-06-14",{"date":81,"type":64},"2027-06",{"name":5,"class":6},1]