[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100266237":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":12,"centralContacts":17,"locations":27,"responsibleParty":46,"collaborators":10,"id":48,"slug":49,"hasResults":50,"nctId":51,"briefTitle":52,"officialTitle":53,"acronym":10,"eligibilityCriteria":54,"healthyVolunteers":50,"sex":55,"minAge":10,"maxAge":10,"enrollmentInfo":56,"targetDuration":59,"studyType":60,"phases":10,"briefSummary":61,"conditions":62,"keywords":64,"overallStatus":30,"whyStopped":10,"lastUpdateSubmitDate":89,"lastUpdatePostDateStruct":90,"startDateStruct":93,"completionDateStruct":95,"leadSponsor":97,"locationsCount":98},{"fullName":5,"class":6},"The International FOP Association","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":10},"FOP Patients",null,"None. IFOPA-REG-001 is a FOP patient observational registry study.",[13],{"name":14,"affiliation":15,"role":16},"Mark Hamilton, PhD","International Fibrodysplasia Ossificans Progressiva Association","STUDY_DIRECTOR",[18,23],{"name":19,"role":20,"phone":21,"phoneExt":10,"email":22},"Mark S Hamilton, PhD","CONTACT","1-203-605-2122","mark.hamilton@ifopa.org",{"name":24,"role":20,"phone":25,"phoneExt":10,"email":26},"Sammi Kile, MS","1-720-341-6999","registry@ifopa.org",[28],{"facility":29,"status":30,"city":31,"state":32,"zip":33,"country":34,"countryCode":35,"cosmosGeoPoint":36,"geoPoint":41,"contacts":42},"The International Fibrodysplasia Ossificans Progressiva Association (IFOPA)","RECRUITING","North Kansas City","Missouri","064116","United States","US",{"type":37,"coordinates":38},"Point",[39,40],-94.56218,39.13,{"lat":40,"lon":39},[43,45],{"name":19,"role":20,"phone":44,"phoneExt":10,"email":22},"1-203-605=2122",{"name":24,"role":20,"phone":25,"phoneExt":10,"email":26},{"type":47,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100266237","the-fibrodysplasia-ossificans-progressiva-fop-registry-100266237",false,"NCT02745158","The Fibrodysplasia Ossificans Progressiva (FOP) Registry","FOP Registry: A Global Registry for the Fibrodysplasia Ossificans Progressiva Community","Inclusion Criteria:\n\n* Participants must have a confirmed diagnosis of FOP.\n* Participants (or a parent or legal guardian) must be willing and able to provide written informed consent.\n\nExclusion Criteria:\n\n* There are no exclusion criteria.","ALL",{"count":57,"type":58},800,"ESTIMATED","20 Years","OBSERVATIONAL","The Fibrodysplasia Ossificans Progressiva (FOP) Registry is a global, non-interventional, voluntary database that captures demographic and disease data directly from FOP patients and their caregivers via a secure, web-based patient portal. A physician portal (in development) will allow physicians to enter clinical data about their patients. The objectives are to organize the international FOP community for participation in clinical trials; to enable FOP patients worldwide to report data in a shared forum; to improve the collective understanding of FOP natural history; and to advance the understanding of FOP treatment outcomes.",[63],"Fibrodysplasia Ossificans Progressiva (FOP)",[65,66,67,68,69,70,71,72,73,74,75,76,77,78,79,80,81,82,83,84,85,86,87,88],"Fibrodysplasia ossificans progressiva","FOP","International FOP Association","Patient Advocacy Group","Patient Registry","Natural History","Patient-Reported Outcomes","Observational Database","Bone Morphogenetic Protein","BMP","Bone Growth","Joint","Mobility","Flare-Up","Heterotopic Ossification","Ectopic Bone","Osteochondroma","Hallux Valgus","ALK2","ACVR1","Activin A","IFOPA","Activin A Receptor Type I","Activin Receptor-like Kinase-2","2026-04-02",{"date":91,"type":92},"2026-04-08","ACTUAL",{"date":94,"type":92},"2015-07",{"date":96,"type":58},"2040-12-31",{"name":5,"class":6},1]