[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100612296":3},{"organization":4,"armGroups":7,"interventions":22,"overallOfficials":10,"centralContacts":26,"locations":10,"responsibleParty":32,"collaborators":10,"id":36,"slug":37,"hasResults":38,"nctId":39,"briefTitle":40,"officialTitle":40,"acronym":41,"eligibilityCriteria":42,"healthyVolunteers":43,"sex":44,"minAge":10,"maxAge":10,"enrollmentInfo":45,"targetDuration":48,"studyType":49,"phases":10,"briefSummary":50,"conditions":51,"keywords":55,"overallStatus":58,"whyStopped":10,"lastUpdateSubmitDate":59,"lastUpdatePostDateStruct":60,"startDateStruct":63,"completionDateStruct":65,"leadSponsor":67,"locationsCount":10},{"fullName":5,"class":6},"Universidad Rey Juan Carlos","OTHER",[8,14,18],{"label":9,"type":10,"description":11,"interventionNames":12},"Group 1",null,"relatives of people diagnosed with AD by a neurologist or geriatrician, who have suffered the loss of a relative with AD; who have lived with and\u002For cared for the person with AD until the end of their life",[13],"Other: Assessment of occupational balance, role performance, caregiving burden, and quality of life among carers or family members of individuals with Alzheimer's disease (AD).",{"label":15,"type":10,"description":16,"interventionNames":17},"Group 2","relatives of people diagnosed with AD by a neurologist or geriatrician; who lived with and\u002For cared for the person with AD; who attended the Day Centre",[13],{"label":19,"type":10,"description":20,"interventionNames":21},"Group 3","relatives of people diagnosed with AD by a neurologist or geriatrician; who had their relative institutionalised in the Residence",[13],[23],{"type":6,"name":24,"description":24,"armGroupLabels":25,"otherNames":10},"Assessment of occupational balance, role performance, caregiving burden, and quality of life among carers or family members of individuals with Alzheimer's disease (AD).",[9,15,19],[27],{"name":28,"role":29,"phone":30,"phoneExt":10,"email":31},"Sara García-Bravo","CONTACT","+34650664793","sara.garcia.bravo@urjc.es",{"type":33,"investigatorFullName":34,"investigatorTitle":35,"investigatorAffiliation":5,"oldNameTitle":10,"oldOrganization":10},"PRINCIPAL_INVESTIGATOR","Sara Garcia Bravo","PhD Physiotherapist","100612296","understanding-the-lived-experience-and-bereavement-of-caregivers-of-people-with-alzheimers-disease-100612296",false,"NCT07251738","Understanding the Lived Experience and Bereavement of Caregivers of People With Alzheimer's Disease","ALCARE","Inclusion Criteria:\n\n* Inclusion criteria for Group 1: relatives of people diagnosed with AD by a neurologist or geriatrician, who have suffered the loss of a relative with AD; who have lived with and\u002For cared for the person with AD until the end of their life; who agree to participate voluntarily in the project and who have signed the informed consent form.\n* Inclusion criteria for Group 2: relatives of people diagnosed with AD by a neurologist or geriatrician; who live with and\u002For care for the person with AD; who attend the Day Centre and who agree to participate voluntarily in the project and have signed the informed consent form.\n* Inclusion criteria for Group 3: relatives of people diagnosed with AD by a neurologist or geriatrician; who have their relative institutionalised in a nursing home and who agree to participate voluntarily in the project and have signed the informed consent form.\n\nExclusion Criteria:\n\n* Those who have not lived with or cared for relatives with AD and who do not agree to participate in the study will be excluded from the project.",true,"ALL",{"count":46,"type":47},66,"ESTIMATED","1 Day","OBSERVATIONAL","The main objective of this study is to explore the lived experience of caregivers and family members of people with Alzheimer's disease (AD), from the beginning of caregiving through the bereavement process following the patient's death. Using a mixed-methods design, qualitative data will be collected through in-depth interviews and combined with quantitative data obtained from standardized scales. The results will aim to determine whether prolonged caregiving significantly affects the caregiver's or family member's personal, emotional, and occupational well-being, as well as whether it leads to a reorganization of activities of daily living (ADL), an increased perception of burden, and\u002For a decreased quality of life. The study will also examine the presence of positive adaptation experiences.",[52,53,54],"Alzheimer Disease (AD)","Occupational Therapy","Family Caregivers",[56,53,57],"Alzheimer's disease","occupational balance","NOT_YET_RECRUITING","2025-11-18",{"date":61,"type":62},"2025-11-26","ACTUAL",{"date":64,"type":47},"2025-12-01",{"date":66,"type":47},"2026-07-31",{"name":5,"class":6}]