[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100565703":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":15,"centralContacts":20,"locations":26,"responsibleParty":43,"collaborators":10,"id":45,"slug":46,"hasResults":47,"nctId":48,"briefTitle":49,"officialTitle":49,"acronym":50,"eligibilityCriteria":51,"healthyVolunteers":47,"sex":52,"minAge":53,"maxAge":10,"enrollmentInfo":54,"targetDuration":10,"studyType":57,"phases":10,"briefSummary":58,"conditions":59,"keywords":63,"overallStatus":28,"whyStopped":10,"lastUpdateSubmitDate":66,"lastUpdatePostDateStruct":67,"startDateStruct":70,"completionDateStruct":72,"leadSponsor":74,"locationsCount":75},{"fullName":5,"class":6},"University Hospital Southampton NHS Foundation Trust","OTHER",[8,12],{"label":9,"type":10,"description":11,"interventionNames":10},"UHS Specialist Clinic population",null,"All patients seen in regional clinic with this diagnosis",{"label":13,"type":10,"description":14,"interventionNames":10},"Interested patients from non-specialty clinics around the country.","Interested patients who meet the inclusion criteria and are from any region in the country with no movement disorder specialist clinic.",[16],{"name":17,"affiliation":18,"role":19},"Boyd CP Ghosh, MBBS","Wessex Neurological Centre","PRINCIPAL_INVESTIGATOR",[21],{"name":22,"role":23,"phone":24,"phoneExt":10,"email":25},"Trial administrator Neurodegenerative research team","CONTACT","0044 2381206132","srikanth.anugu@uhs.nhs.uk",[27],{"facility":18,"status":28,"city":29,"state":30,"zip":31,"country":32,"countryCode":33,"cosmosGeoPoint":34,"geoPoint":39,"contacts":40},"RECRUITING","Southampton","Hampshire","SO16 6YD","United Kingdom","UK",{"type":35,"coordinates":36},"Point",[37,38],-1.40428,50.90395,{"lat":38,"lon":37},[41],{"name":42,"role":23,"phone":24,"phoneExt":10,"email":25},"Trial administrator Neurodegenerative disease team",{"type":44,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100565703","utilisation-of-health-services-and-quality-of-life-in-patients-with-atypical-parkinsonian-syndromes-100565703",false,"NCT06645626","Utilisation of Health Services and Quality of Life in Patients With Atypical Parkinsonian Syndromes","UHSQOLAPS","Inclusion Criteria:\n\nPatients and their carers must:\n\n* Be aged 18 or over\n* Have capacity to consent at the beginning of their involvement\n* Have a diagnosis of a neurodegenerative disease which includes progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy but may include other closely related diseases where the presentation is similar, such as Alzheimer's disease where they present with a corticobasal syndrome\n\nExclusion Criteria:\n\n* Patients or carers not meeting the inclusion criteria\n* Patients with static deficits only who do not have a neurodegenerative syndrome.\n* Patients who the principal investigator feels are not suitable to take part due to co-morbidities or participation in other trials.","ALL","18 Years",{"count":55,"type":56},198,"ESTIMATED","OBSERVATIONAL","The study will compare health care utilisation and quality of life for patients with progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy in different parts of the region that our specialist clinic operates in with different services as well as in other regions with no specialist clinics. This study aims to investigate which aspects of the service are most beneficial for the patients and to determine the influence of support services and specialty clinics on patients and their carers.",[60,61,62],"Progressive Supranuclear Palsy","Cortico Basal Degeneration","Multiple System Atrophy",[64,65],"quality of life","health economics","2024-10-15",{"date":68,"type":69},"2024-10-17","ACTUAL",{"date":71,"type":69},"2022-10-10",{"date":73,"type":56},"2027-07-15",{"name":5,"class":6},1]