[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"leadSponsorName\":\"Sarah Schlegel\",\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:":64},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,1,0,[8],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":13,"acronym":4,"eligibilityCriteria":14,"healthyVolunteers":15,"sex":16,"minAge":17,"maxAge":4,"enrollmentInfo":18,"targetDuration":4,"studyType":21,"phases":22,"briefSummary":24,"conditions":25,"keywords":28,"overallStatus":52,"whyStopped":4,"lastUpdateSubmitDate":53,"lastUpdatePostDateStruct":54,"startDateStruct":57,"completionDateStruct":59,"leadSponsor":61,"locationsCount":5},"100592143","breaking-silence-through-story-a-narrative-medicine-intervention-for-parents-of-children-with-urogenital-conditions-100592143",false,"NCT06989593","Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions","Inclusion Criteria:\n\n* Parent or legal guardian of a child (age 0-17 years) diagnosed with a urogenital condition (such as differences of sex development or hypospadias)\n* Able to read and understand English\n* Willing to complete a guided journaling intervention (through writing or dictation) over a period of approximately 5 weeks\n* Willing to participate in a 45 minute follow-up interview\n* Able to provide informed consent\n\nExclusion Criteria:\n\n* Parent\u002Fguardian with severe psychiatric disorder that would interfere with participation as determined by referring physician\n* Parent\u002Fguardian unable to complete either written journaling activities or dictation\n* Inability to provide informed consent",true,"ALL","18 Years",{"count":19,"type":20},20,"ESTIMATED","INTERVENTIONAL",[23],"NA","The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development and hypospadias).\n\nThe main questions it aims to answer are:\n\n* Does guided journaling help to reduce anxiety levels in parents of children with urogenital conditions?\n* What are parents' perspectives on group-based writing interventions for future support programs?\n\nParticipants will:\n\n* Complete a short anxiety questionnaire (the General Anxiety Disorder-7 scale) at the beginning of the study\n* Receive a physical journal with 5 writing prompts designed to help process emotions related to their child's condition\n* Complete 5 journal entries over several weeks, writing about their experiences and feelings\n* Complete the same anxiety questionnaire again after finishing the journal entries\n* Participate in a 45-minute interview to discuss how the journaling affected their stress levels and gather feedback on potential group-based writing programs",[26,27],"DSD","Hypospadias",[29,27,30,31,32,33,34,35,36,37,38,39,40,41,42,43,44,45,46,47,48,49,50,51],"Disorders of Sex Development","Anxiety","Stress, Psychological","Parents","Psychological Adaptation","Writing","Narrative Therapy","Qualitative Research","Patient Participation","Social Support","Mental Health","Interpersonal Relations","Parent-Child Relations","Urogenital Abnormalities","Female Urogenital Diseases","Urogenital Diseases","Penile Diseases","Genital Diseases, Male","Genital Diseases","Male Urogenital Diseases","Congenital Abnormalities","Gonadal Disorders","Endocrine System Diseases","RECRUITING","2026-05-14",{"date":55,"type":56},"2026-05-18","ACTUAL",{"date":58,"type":56},"2025-10-10",{"date":60,"type":20},"2026-11",{"name":62,"class":63},"Sarah Schlegel","OTHER",""]