[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"dsd\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:dsd":26},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,2,0,[8,65],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":13,"acronym":4,"eligibilityCriteria":14,"healthyVolunteers":15,"sex":16,"minAge":17,"maxAge":4,"enrollmentInfo":18,"targetDuration":4,"studyType":21,"phases":22,"briefSummary":24,"conditions":25,"keywords":28,"overallStatus":52,"whyStopped":4,"lastUpdateSubmitDate":53,"lastUpdatePostDateStruct":54,"startDateStruct":57,"completionDateStruct":59,"leadSponsor":61,"locationsCount":64},"100592143","breaking-silence-through-story-a-narrative-medicine-intervention-for-parents-of-children-with-urogenital-conditions-100592143",false,"NCT06989593","Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions","Inclusion Criteria:\n\n* Parent or legal guardian of a child (age 0-17 years) diagnosed with a urogenital condition (such as differences of sex development or hypospadias)\n* Able to read and understand English\n* Willing to complete a guided journaling intervention (through writing or dictation) over a period of approximately 5 weeks\n* Willing to participate in a 45 minute follow-up interview\n* Able to provide informed consent\n\nExclusion Criteria:\n\n* Parent\u002Fguardian with severe psychiatric disorder that would interfere with participation as determined by referring physician\n* Parent\u002Fguardian unable to complete either written journaling activities or dictation\n* Inability to provide informed consent",true,"ALL","18 Years",{"count":19,"type":20},20,"ESTIMATED","INTERVENTIONAL",[23],"NA","The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development and hypospadias).\n\nThe main questions it aims to answer are:\n\n* Does guided journaling help to reduce anxiety levels in parents of children with urogenital conditions?\n* What are parents' perspectives on group-based writing interventions for future support programs?\n\nParticipants will:\n\n* Complete a short anxiety questionnaire (the General Anxiety Disorder-7 scale) at the beginning of the study\n* Receive a physical journal with 5 writing prompts designed to help process emotions related to their child's condition\n* Complete 5 journal entries over several weeks, writing about their experiences and feelings\n* Complete the same anxiety questionnaire again after finishing the journal entries\n* Participate in a 45-minute interview to discuss how the journaling affected their stress levels and gather feedback on potential group-based writing programs",[26,27],"DSD","Hypospadias",[29,27,30,31,32,33,34,35,36,37,38,39,40,41,42,43,44,45,46,47,48,49,50,51],"Disorders of Sex Development","Anxiety","Stress, Psychological","Parents","Psychological Adaptation","Writing","Narrative Therapy","Qualitative Research","Patient Participation","Social Support","Mental Health","Interpersonal Relations","Parent-Child Relations","Urogenital Abnormalities","Female Urogenital Diseases","Urogenital Diseases","Penile Diseases","Genital Diseases, Male","Genital Diseases","Male Urogenital Diseases","Congenital Abnormalities","Gonadal Disorders","Endocrine System Diseases","RECRUITING","2026-05-14",{"date":55,"type":56},"2026-05-18","ACTUAL",{"date":58,"type":56},"2025-10-10",{"date":60,"type":20},"2026-11",{"name":62,"class":63},"Sarah Schlegel","OTHER",1,{"id":66,"slug":67,"hasResults":11,"nctId":68,"briefTitle":69,"officialTitle":70,"acronym":71,"eligibilityCriteria":72,"healthyVolunteers":15,"sex":16,"minAge":4,"maxAge":73,"enrollmentInfo":74,"targetDuration":17,"studyType":76,"phases":4,"briefSummary":77,"conditions":78,"keywords":4,"overallStatus":52,"whyStopped":4,"lastUpdateSubmitDate":80,"lastUpdatePostDateStruct":81,"startDateStruct":83,"completionDateStruct":85,"leadSponsor":87,"locationsCount":64},"100443774","minipuberty-in-infants-born-with-potential-hypogonadism-hypogonadotrope-100443774","NCT05058781","Minipuberty in Infants Born With Potential Hypogonadism Hypogonadotrope","Evaluation of Minipuberty in Infants Born With a Variation in Sexual Development","MiniNO","Inclusion Criteria:\n\n* infants born with symptoms of DSD\n* infants born from parents with CHH\n\nExclusion Criteria:\n\n* premature \\\u003C 35 weeks of gestation\n* male infants with high scrotal cryptorchidism","9 Months",{"count":75,"type":20},100,"OBSERVATIONAL","Disorders of sex development (DSD) occur in 1\u002F3000 births and are defined by variation in aspect of external genital organs, e.g. cryptorchidism, hypospadias and micropenis in male infants and clitoral hypertrophy in female infants. Genetic, hormonal and environmental factors are implicated in DSD. Infants with congenital hypogonadism hypogonadotrope (CHH) can present with DSD. Evaluation of hormonal profile during minipuberty could be of great help to better characterize the etiology of DSD and CHH in particular. Our main objective is to study hormonal profile during the minipuberty of infants born with DSD or born from parents with CHH compared to controls.",[26,79],"CHH","2022-07-19",{"date":82,"type":56},"2022-07-22",{"date":84,"type":56},"2017-01-01",{"date":86,"type":20},"2030-12-31",{"name":88,"class":63},"Centre Hospitalier Universitaire Vaudois"]