[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"kaposiform-lymphangiomatosis\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:kaposiform-lymphangiomatosis":29},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,2,0,[8,49],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":13,"acronym":4,"eligibilityCriteria":14,"healthyVolunteers":11,"sex":15,"minAge":4,"maxAge":4,"enrollmentInfo":16,"targetDuration":19,"studyType":20,"phases":4,"briefSummary":21,"conditions":22,"keywords":33,"overallStatus":36,"whyStopped":4,"lastUpdateSubmitDate":37,"lastUpdatePostDateStruct":38,"startDateStruct":41,"completionDateStruct":43,"leadSponsor":45,"locationsCount":48},"100239778","lymphatic-anomalies-registry-for-the-assessment-of-outcome-data-100239778",false,"NCT02399527","Lymphatic Anomalies Registry for the Assessment of Outcome Data","Inclusion Criteria:\n\n* Clinical diagnosis of complex vascular tumor, malformation or overgrowth syndrome with significant lymphatic component","ALL",{"count":17,"type":18},1000,"ESTIMATED","15 Years","OBSERVATIONAL","Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.",[23,24,25,26,27,28,29,30,31,32],"Lymphatic Malformation","Generalized Lymphatic Anomaly (GLA)","Central Conducting Lymphatic Anomaly","CLOVES Syndrome","Gorham-Stout Disease (\"Disappearing Bone Disease\")","Blue Rubber Bleb Nevus Syndrome","Kaposiform Lymphangiomatosis","Kaposiform Hemangioendothelioma\u002FTufted Angioma","Klippel-Trenaunay Syndrome","Lymphangiomatosis",[34,35,23],"Vascular Anomalies","Lymphatic Anomalies","RECRUITING","2026-04-21",{"date":39,"type":40},"2026-04-24","ACTUAL",{"date":42,"type":40},"2013-06",{"date":44,"type":18},"2035-06",{"name":46,"class":47},"Boston Children's Hospital","OTHER",1,{"id":50,"slug":51,"hasResults":11,"nctId":52,"briefTitle":53,"officialTitle":53,"acronym":4,"eligibilityCriteria":54,"healthyVolunteers":11,"sex":15,"minAge":55,"maxAge":4,"enrollmentInfo":56,"targetDuration":4,"studyType":20,"phases":4,"briefSummary":57,"conditions":58,"keywords":65,"overallStatus":36,"whyStopped":4,"lastUpdateSubmitDate":72,"lastUpdatePostDateStruct":73,"startDateStruct":75,"completionDateStruct":77,"leadSponsor":79,"locationsCount":5},"100285864","identification-of-biomarkers-for-patients-with-vascular-anomalies-100285864","NCT03001180","Identification of Biomarkers for Patients with Vascular Anomalies","Inclusion Criteria:\n\n* Any patient having labs drawn as standard of care will have blood drawn for the study if consented\u002F assented.\n* All patients who are undergoing a surgical procedure or sclerotherapy are currently consented for participation in the tissue bank.\n\nExclusion Criteria:\n\n* N\u002FA","1 Day",{"count":17,"type":18},"The study will use blood (serum and plasma) and tissue obtained from participants undergoing prescribed surgical resection of vascular anomalies of interest proposed in this study. The study will also use blood (serum and plasma) and tissue collected and stored in a tissue bank maintained by the Department of Hematology\u002FOncology.",[59,60,61,29,62,63,64],"Vascular Anomaly","Generalized Lymphatic Anomaly","Kaposiform Hemangioendothelioma","Gorham-Stout Disease","Klippel Trenaunay Syndrome","Congenital Lipomatous Overgrowth, Vascular Malformations, and Epidermal Nevi",[60,59,61,29,66,67,68,69,70,71],"Vascular Endothelial Growth Factor","Biomarkers","GLA","KLA","KHE","GSD","2024-11-05",{"date":74,"type":40},"2024-11-06",{"date":76,"type":4},"2015-04",{"date":78,"type":18},"2050-12",{"name":80,"class":47},"Children's Hospital Medical Center, Cincinnati"]