[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"narrative-medicine\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:narrative-medicine":24},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,3,0,[8,41,71],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":13,"acronym":4,"eligibilityCriteria":14,"healthyVolunteers":11,"sex":15,"minAge":16,"maxAge":17,"enrollmentInfo":18,"targetDuration":4,"studyType":21,"phases":4,"briefSummary":22,"conditions":23,"keywords":25,"overallStatus":28,"whyStopped":4,"lastUpdateSubmitDate":29,"lastUpdatePostDateStruct":30,"startDateStruct":33,"completionDateStruct":35,"leadSponsor":37,"locationsCount":40},"100323678","mypath-story-booth-100323678",false,"NCT03494075","MyPaTH Story Booth","Inclusion Criteria:\n\n* Over the age of 18\n\nExclusion Criteria:\n\n* Researchers will exclude individuals who are not 18 years of age or older and\u002For do not provide informed consent","ALL","18 Years","99 Years",{"count":19,"type":20},2000,"ESTIMATED","OBSERVATIONAL","The MyPaTH Story Booth will use an (audio) \"document\" approach to elicit in depth experiential knowledge or perspectives from patients and caregivers by recording their personal stories.",[24],"Narrative Medicine",[26,27],"Patients","Caregivers","RECRUITING","2026-06-09",{"date":31,"type":32},"2026-06-11","ACTUAL",{"date":34,"type":4},"2016-03",{"date":36,"type":20},"2030-06",{"name":38,"class":39},"University of Pittsburgh","OTHER",1,{"id":42,"slug":43,"hasResults":11,"nctId":44,"briefTitle":45,"officialTitle":46,"acronym":47,"eligibilityCriteria":48,"healthyVolunteers":11,"sex":15,"minAge":16,"maxAge":4,"enrollmentInfo":49,"targetDuration":4,"studyType":51,"phases":52,"briefSummary":54,"conditions":55,"keywords":59,"overallStatus":61,"whyStopped":4,"lastUpdateSubmitDate":62,"lastUpdatePostDateStruct":63,"startDateStruct":65,"completionDateStruct":67,"leadSponsor":69,"locationsCount":40},"100572557","storytelling-to-promote-living-donor-kidney-transplant-100572557","NCT06734819","Storytelling to Promote Living Donor Kidney Transplant","Effectiveness of Digital Storytelling in Increasing Living Kidney Donor Recruitment in Canada","LDKT Stories","Inclusion Criteria:\n\n* Waitlisted and newly referred kidney transplant candidates at the Vancouver Kidney Transplant Program\n* 18 years of age or older\n* Able to provide informed consent\n* English literate\n\nExclusion Criteria:\n\n* Inability to understand English and provide informed consent\n* Transplant candidates excluded from transplantation based on clinical criteria or other contraindications for transplant\n* Unwilling to disclose information on race or ethnicity",{"count":50,"type":20},80,"INTERVENTIONAL",[53],"NA","This study will examine the effectiveness of first-person storytelling in encouraging patients with end-stage renal disease to pursue Living Donor Kidney Transplant (LDKT). The Living Donation Storytelling Library LDSP is a library of videos from donors and recipients sharing their transplant stories, serving as a narrative-based transplant education resource. This study will investigate if exposure to the LDSP changes patient readiness and motivation to pursue LDKT to ultimately increase the number of donor inquiries and donor evaluations. This study will also test if the LDSP serves as a health-literate and culturally safe education approach that can effectively support racialized communities who have a disproportionately higher need for LDKT.",[56,57,58,24],"Living Donor Kidney Transplantation","Health Equity","Patient Education",[56,57,58,24,60],"Digital Storytelling","NOT_YET_RECRUITING","2024-12-14",{"date":64,"type":32},"2024-12-18",{"date":66,"type":20},"2024-12",{"date":68,"type":20},"2025-12",{"name":70,"class":39},"University of British Columbia",{"id":72,"slug":73,"hasResults":11,"nctId":74,"briefTitle":75,"officialTitle":76,"acronym":77,"eligibilityCriteria":78,"healthyVolunteers":11,"sex":15,"minAge":4,"maxAge":79,"enrollmentInfo":80,"targetDuration":4,"studyType":51,"phases":82,"briefSummary":83,"conditions":84,"keywords":89,"overallStatus":28,"whyStopped":4,"lastUpdateSubmitDate":96,"lastUpdatePostDateStruct":97,"startDateStruct":99,"completionDateStruct":101,"leadSponsor":103,"locationsCount":40},"100539920","effect-of-pediatric-intensive-care-unit-diaries-on-pics-p-100539920","NCT06310109","Effect of Pediatric Intensive Care Unit Diaries on PICS-p","Effect of Pediatric Intensive Care Unit (PICU) Diaries on the Post Intensive Care Syndrome (PICS-p) in Children and Young Adults and Their Caregivers","PICS-p","Inclusion Criteria:\n\n* children\u002Fadolescents admitted to the PICU\n* Mechanical ventilation for \\> 48 hours\n* Patient's age \\\u003C19 years old\n\nExclusion Criteria:\n\n* parents who are unable to communicate in Italian language\n* parents who have not signed and informed consent\n* patients with a poor prognosis","19 Years",{"count":81,"type":20},110,[53],"When children become very sick and need to stay in a Pediatric Intensive Care Unit (PICU), it can have a big impact on their recovery and their family's well-being. Sometimes kids and their families feel worried or sad even after they leave the hospital. This can have an impact on the quality of their life after hospital discharge.\n\nTo help understand and improve these experiences, the investigators want to study the \"PICU diaries.\" These are journals that families and hospital staff can write in during the child's time in the hospital. Parents, other visitors and healthcare professionals can share thoughts, experiences, and even drawings or photos related to the child's admission. The content is a narrative account of what happens during the child's hospital stay, for the family to take home at PICU discharge.\n\nThe investigators believe that writing in these diaries might help children and their families feel better after leaving the hospital. It might help kids feel less worried or sad, and it might also help their parents or caregivers feel better too.\n\nThe study will include children who have been in the PICU and their families. Some families will receive these special diaries to use during their time in the hospital, while others won't. We'll then see how everyone feels after they leave the hospital and compare the two groups to see if the diaries make a difference.\n\nThe investigators hope that by understanding how these diaries can help, healthcare professionals can make hospital experiences better for everyone involved.",[85,24,86,87,88],"Post Intensive Care Syndrome","Post Traumatic Stress Disorder","Anxiety","Depression",[85,90,91,92,93,94,95],"Pediatric","Children","Diary","ICU diary","Narrative medicine","Pediatric Intensive Care Unit","2024-08-07",{"date":98,"type":32},"2024-08-09",{"date":100,"type":32},"2021-07-14",{"date":102,"type":20},"2024-10-31",{"name":104,"class":39},"Bambino Gesù Children's Hospital IRCCS"]