[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"neuromuscular-diseases-in-children\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:neuromuscular-diseases-in-children":27},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,3,0,[8,44,76],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":14,"acronym":4,"eligibilityCriteria":15,"healthyVolunteers":11,"sex":16,"minAge":17,"maxAge":18,"enrollmentInfo":19,"targetDuration":4,"studyType":22,"phases":23,"briefSummary":25,"conditions":26,"keywords":28,"overallStatus":31,"whyStopped":4,"lastUpdateSubmitDate":32,"lastUpdatePostDateStruct":33,"startDateStruct":36,"completionDateStruct":38,"leadSponsor":40,"locationsCount":43},"100609573","gamification-effects-on-the-6-minute-walk-test-in-children-100609573",false,"NCT07216339","Gamification Effects on the 6-Minute Walk Test in Children","Effect of Gamification on 6-Minute Walk Test Performance and Engagement in Pediatric Neuromuscular Patients","Inclusion Criteria:\n\n* Clinical diagnosis of, or active evaluation for, a neuromuscular disorder\n* Able to ambulate (with or without usual orthoses\u002Fassistive device) sufficiently to attempt a 6-minute walk.\n* Note: Acceptable if the patient needs to take breaks or sit during the test. Those unable to finish are counted as protocol deviations, not exclusions.\n* Medically stable on the test day (no acute illness or recent surgery that would contraindicate moderate exercise).\n* Child able to understand simple instructions in English and provide assent (if applicable based upon age and developmental level); parent\u002Fguardian able to provide consent in English.\n\nExclusion Criteria:\n\n* Non-ambulatory or unsafe to attempt walking as judged by the treating physician.\n* Severe cognitive\u002Fbehavioral impairment that precludes following instructions.\n* Acute cardiopulmonary, orthopedic, or other medical condition that makes walking unsafe on the test day.\n* Non-English-speaking family (materials are available only in English for this pilot).\n* Any child\u002Fparent who declines consent\u002Fassent or withdraws at any time.","ALL","6 Years","12 Years",{"count":20,"type":21},20,"ESTIMATED","INTERVENTIONAL",[24],"NA","The goal of this study is to learn if adding a game to the 6-minute walk test for children with neuromuscular disorders will increase enjoyment and motivation to complete the test.",[27],"Neuromuscular Diseases in Children",[29,30],"Gamification","Walk Test","NOT_YET_RECRUITING","2026-06-03",{"date":34,"type":35},"2026-06-05","ACTUAL",{"date":37,"type":21},"2026-06",{"date":39,"type":21},"2026-12-01",{"name":41,"class":42},"David Toupin","OTHER",1,{"id":45,"slug":46,"hasResults":11,"nctId":47,"briefTitle":48,"officialTitle":49,"acronym":50,"eligibilityCriteria":51,"healthyVolunteers":52,"sex":16,"minAge":4,"maxAge":53,"enrollmentInfo":54,"targetDuration":56,"studyType":57,"phases":4,"briefSummary":58,"conditions":59,"keywords":62,"overallStatus":66,"whyStopped":4,"lastUpdateSubmitDate":67,"lastUpdatePostDateStruct":68,"startDateStruct":70,"completionDateStruct":72,"leadSponsor":74,"locationsCount":43},"100472645","cimr-neuromuscular-research-biobank-100472645","NCT05434572","CIMR Neuromuscular Research Biobank","Center for Inherited Muscle Research Neuromuscular Research Biobank","NRB-0001","Inclusion Criteria:\n\n* Willing and able to give informed consent\n* Positive diagnosis or suspected diagnosis of neuromuscular disease, or\n* Family history of neuromuscular disease, or\n* Healthy volunteer\n* Age Neonates-75\n\nExclusion Criteria:\n\n* Unwilling to sign consent",true,"75 Years",{"count":55,"type":21},500,"1 Day","OBSERVATIONAL","The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.",[60,61,27],"Neuromuscular Diseases","Neuromuscular Disorder",[63,64,65,61],"Neuromuscular","Research Repository","Biobank","RECRUITING","2025-07-01",{"date":69,"type":35},"2025-07-04",{"date":71,"type":35},"2021-03-17",{"date":73,"type":21},"2030-02",{"name":75,"class":42},"Virginia Commonwealth University",{"id":77,"slug":78,"hasResults":11,"nctId":79,"briefTitle":80,"officialTitle":81,"acronym":4,"eligibilityCriteria":82,"healthyVolunteers":52,"sex":16,"minAge":83,"maxAge":84,"enrollmentInfo":85,"targetDuration":4,"studyType":57,"phases":4,"briefSummary":87,"conditions":88,"keywords":94,"overallStatus":66,"whyStopped":4,"lastUpdateSubmitDate":99,"lastUpdatePostDateStruct":100,"startDateStruct":102,"completionDateStruct":104,"leadSponsor":106,"locationsCount":43},"100574234","respiratory-functions-thoracoabdominal-movements-and-exercise-capacity-in-neuromuscular-diseases-100574234","NCT06756633","Respiratory Functions, Thoracoabdominal Movements and Exercise Capacity in Neuromuscular Diseases","Evaluation of Respiratory Functions, Thoracoabdominal Movements, and Exercise Capacity in Neuromuscular Diseases","1. Duchenne Muscular Dystrophy (DMD)\n\n   -Inclusion Criteria: Clinically diagnosed with Duchenne Muscular Dystrophy. Age above 5 years. Able to breathe independently. Willing to participate in the study.\n\n   -Exclusion Criteria: Presence of cognitive problems that affect the assessment results. History of pulmonary surgery. Advanced heart failure.\n2. Spinal Muscular Atrophy (SMA)\n\n   -Inclusion Criteria: Clinically diagnosed with Spinal Muscular Atrophy. Age above 5 years. Able to breathe independently. Willing to participate in the study.\n\n   -Exclusion Criteria: Presence of cognitive problems that affect the assessment results. History of pulmonary surgery. Advanced heart failure.\n3. Healthy Controls\n\n   * Inclusion Criteria:\n\nNo diagnosis of neuromuscular diseases. Age above 5 years. Able to breathe independently. Willing to participate in the study.\n\n-Exclusion Criteria: Presence of cognitive problems that affect the assessment results. History of pulmonary surgery. Advanced heart failure.","5 Years","15 Years",{"count":86,"type":21},42,"The clinical trial titled \"Investigation of Respiratory Functions, Thoracoabdominal Movements, and Exercise Capacity in Neuromuscular Diseases\" aims to evaluate the respiratory functions, thoracoabdominal movements, and exercise capacity in children with Duchenne Muscular Dystrophy (DMD) and Spinal Muscular Atrophy (SMA) compared to healthy controls. The study will use spirometry, structured light plethysmography (SLP), the six-minute walk test, and the six-minute pegboard ring test to assess these functions. This trial will be conducted at the Lokman Hekim University Muscle and Nerve Diseases Application and Research Center from May 2024 to Dec 2025.",[27,89,90,91,92,93],"Respiratory Function Impaired","Respiratory Insufficiency","Duchenne Muscular Dystrophy","Spinal Muscular Atrophy","Plethysmography",[95,96,97,98],"Duchenne muscular dystrophy","Spinal muscular atrophy","respiratory function tests","plethysmography","2024-12-25",{"date":101,"type":35},"2025-01-03",{"date":103,"type":35},"2024-04-01",{"date":105,"type":21},"2025-12-28",{"name":107,"class":108},"Lokman Hekim University","OTHER_GOV"]