[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"pma---progressive-muscular-atrophy\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:pma---progressive-muscular-atrophy":29},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,1,0,[8],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":13,"acronym":4,"eligibilityCriteria":14,"healthyVolunteers":11,"sex":15,"minAge":16,"maxAge":17,"enrollmentInfo":18,"targetDuration":21,"studyType":22,"phases":4,"briefSummary":23,"conditions":24,"keywords":4,"overallStatus":31,"whyStopped":4,"lastUpdateSubmitDate":32,"lastUpdatePostDateStruct":33,"startDateStruct":36,"completionDateStruct":38,"leadSponsor":40,"locationsCount":43},"100513482","alsmnd-natural-history-study-data-repository-100513482",false,"NCT05966038","ALS\u002FMND Natural History Study Data Repository","Inclusion Criteria:\n\n* A clinical diagnosis of El Escorial of suspected, possible, probable, or definite ALS or\n* Other motor neuron disorders, including but not limited to Spinal-Bulbar Muscular Atrophy (SBMA, Kennedy's disease), Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis (PLS), Progressive Muscular Atrophy (PMA), and Progressive Bulbar Palsy (PBP)\n\nExclusion Criteria:\n\n* Disease does not meet criteria for any motor neuron disorder","ALL","18 Years","90 Years",{"count":19,"type":20},5000,"ESTIMATED","5 Years","OBSERVATIONAL","This is a data repository for multi-site multi-protocol clinic-based Natural History Study of ALS and Other Motor Neuron Disorders (MND).\n\nAll people living with ALS or other MNDs who attend clinics at the Study hospitals (sites) are offered to participate in the Study.\n\nThe Sites collect so-called Baseline information including demographics, disease history and diagnosis, family history, etc. At each visit, the Sites also collect multiple disease-specific outcome measures and events. The information is captured in NeuroBANK, a patient-centric clinical research platform.\n\nThe Sites have an option to choose to collect data into 20+ additional forms capturing biomarkers and outcome measures. Captured data after its curation are anonymized (all personal identifiers and dates are being removed), and the anonymized dataset is shared with medical researchers via a non-exclusive revocable license.\n\nFunding Source - Biogen, Inc.; Mitsubishi Tanabe Pharma America; FDA OOPD.",[25,26,27,28,29,30],"ALS","PLS","MND (Motor Neurone DIsease)","Kennedy Disease","PMA - Progressive Muscular Atrophy","PBP - Progressive Bulbar Palsy","RECRUITING","2026-05-18",{"date":34,"type":35},"2026-05-20","ACTUAL",{"date":37,"type":35},"2015-04-01",{"date":39,"type":20},"2030-12-31",{"name":41,"class":42},"Massachusetts General Hospital","OTHER",18]