Pediatric idiopathic nephrotic syndrome (INS) is a rare disease for which the optimal therapeutic strategy has not yet been defined. A network of clinicians treating complicated forms of this disease (grouped within the Société de Néphrologie Pédiatrique, SNP) exists, but to date there is no prospective cohort following up these patients that would facilitate the development of cohort-nested trials. This absence of structured follow up makes it difficult to set up prospective studies.
The main objective is to create a prospective cohort of pediatric INS patients to collect cases treated in SNP centers, to study their epidemiological characteristics, and to provide a basis for comparison for future cohort-nested trials.
Patient under 18 years of age
With idiopathic nephrotic syndrome (according to SPN criteria) beginning after January 1, 2018
Child seen at least once in consultation or hospitalization by a pediatrician member of the Society of Pediatric Nephrology
Residing in France
Refusal of the patient or legal representatives to participate in the cohort