Addressing Emotional Distress in Dyads of Persons With a Young Onset Dementia (YOD) and Their Care-partners

Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age18-65
SponsorMassachusetts General Hospital

About this trial

The purpose of the present investigation is to test the efficacy of a virtual, brief (6 sessions) dyadic (patient and care-partner together) intervention to prevent chronic emotional distress in dyads where one person is diagnosed with Young Onset Dementia (YOD). Through this study, we seek to address the unmet need of preventing chronic emotional distress in YOD dyads through a feasible, acceptable and credible program, and ideally enhance resiliency and improve wellbeing and quality of life in both members of the dyad.

Eligibility criteria

Qualifiers

Between the ages of 18-65 at the time of enrollment [both patient and care-partner]

Diagnosis of young-onset dementia (FTD, PPA, AD, PCA, etc.) with symptom onset prior to age 65 [patient]

A designated care-partner willing and interested to participate [both patient and care-partner]

Received YOD diagnosis in the past 6 month [patient]

Disqualifiers

An additional, terminal diagnosis such as cancer

Lack of access to internet and/or a device with a camera

Current untreated or unstable severe mental health conditions like bipolar disorder, schizophrenia, or active substance use

Trial design

Treatments tested in this trial

  • Resilient Together-YOD
  • Health Enhancement Program-YOD

Treatment groups

388 Participants
are divided into 2 treatment groups

Sponsors and collaborators