ADPKD Patient Registry
ConditionPolycystic Kidney Diseases
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorPKD Foundation
About this trial
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways:
* Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.
Eligibility criteria
Qualifiers
Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD)
Disqualifiers
caretakers, family members or friends of individuals with ADPKD
Trial design
Treatments tested in this trial
- Not listed
Trial groups
3,000 Participants
are grouped into 1 trial groupSponsors and collaborators
Source ClinicalTrials.gov