The goal of this observational study is to evaluate an innovative pediatric transitional care unit called the Jeroen Pit Huis (JPH). The primary objective of our study is to investigate whether an intermediate stay between hospital and home in the JPH have a favourable effect on healthcare consumption, patient, parent and family-relevant quantitative outcome measures, compared to discharge directly from a hospital ward. Parents will be asked to complete several questionnaires on three different time points (at discharge, 3 and 12 months of follow up).
Age: at term (older than 37 weeks corrected gestational age) and younger than 18 years
Admitted to the hospital with (a deterioration of) a chronic complex condition (CCC) [30] and/or (expected) continuous dependence on technology after discharge (see ad 2 below).
Expected need of specialized medical and/or allied health care after discharge
A stable medical condition and/or a set treatment regimen (see below ad 4)
None
Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)
Lead sponsor
ZonMw: The Netherlands Organisation for Health Research and Development
Collaborator
Erasmus Medical Center
Collaborator
Stichting Katholieke Universiteit- Radboudumc (RUMC), Netherlands
Collaborator
University Medical Center Groningen
Collaborator
UMC Utrecht
Collaborator