CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorAnn & Robert H Lurie Children's Hospital of Chicago
About this trial
The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD
Eligibility criteria
Qualifiers
None
Disqualifiers
None
Trial design
Treatments tested in this trial
- Not listed
Trial groups
No trial groups listed
Sponsors and collaborators
Ann & Robert H Lurie Children's Hospital of Chicago
Lead sponsor
Groupe Hospitalier Pitie-Salpetriere
Collaborator
Great Ormond Street Hospital for Children NHS Foundation Trust
Collaborator
Hopital Universitaire Robert-Debre
Collaborator
Source ClinicalTrials.gov