About this trial
This clinical trial evaluates the effectiveness of trained community engagement specialists for improving communication on colorectal cancer (CRC) prevention and genetic testing among Hispanic/Latino/a/x (H/L) communities. CRC is the second and third leading cause of cancer deaths among United States (US) H/L men and women respectively. Knowledge of inherited germline mutations (changes in a gene that occurs in a sperm or egg cell) is critical for understanding cause of disease and can impact patient treatment options and outcomes. Educational programs and participant engagement approaches focused on H/L individuals considering Latino cultural values, literacy, numeracy, barriers faced, cultural beliefs and attitudes, as well as language of participants are much needed to address these observed disparities. The Community Genetic Navigation Specialists (CoGENES) Program focuses on increasing knowledge, and preparing the CoGENES trainees to help respond to questions, fears, and concerns regarding genetic testing, counseling, biospecimen (sample of urine, blood, or tissue cells) donation and participation in clinical trials to H/L community members, patients and their families. CoGENES may improve communication on colorectal cancer prevention and genetic testing which can help reduce cancer disparities among H/L communities.
Eligibility criteria
Qualifiers
Must be 18 years of age or older
Ability to understand and the willingness to sign a written informed consent
Self-reported H/L ethnicity, of any race
Ability to read, write, and speak Spanish or English
Disqualifiers
Anyone younger than 18 years of age
Any person with major cognitive deficit or psychiatric impairment
Any person unable to read and write Spanish or English
Resides outside of Los Angeles County
Trial design
Treatments tested in this trial
- Best Practice
- Health Promotion and Education
- Survey Administration
Treatment groups
Sponsors and collaborators
University of Southern California
Lead sponsor
National Cancer Institute (NCI)
Collaborator