It has frequently been shown that people with long term physical health conditions, like epilepsy, are more likely to have mental health conditions. Studies have shown people with epilepsy report high levels of shame, stress, social isolation and anxiety. Mental health interventions for people with epilepsy, particularly children, has been identified as an area for further research by the NHS.
Compassion based interventions have been effective with people with long term physical health conditions. These interventions aim to develop an individual's compassion towards the self and others in response to self-criticism or shame. This study aims to explore whether Compassion Focussed Therapy informed psychoeducation and Loving Kindness Meditation is a feasible and effective intervention for children with epilepsy.
Children and young people aged 12-17 years old who have a diagnosis of epilepsy and mild/moderate distress related to their health condition are eligible. Local clinicians in epilepsy services will be asked to identify potential participants. Up to six children/young people will be included in the study. Participants will complete outcomes measures (about their quality of life, mood and self-compassion) weekly before the intervention, for up to five weeks, and then weekly until the end of the intervention. The intervention will be three sessions with the lead researcher, conducted online via Microsoft teams. Participants will then have four weeks to practice Loving Kindness Meditation. They will then have a follow up session about how they found the intervention, what was helpful and what they would change. The results from the study will indicate whether Compassion Focussed Therapy and Loving Kindness Meditation is a beneficial therapeutic intervention for children with epilepsy and if further research in the area is warranted.
12-17 years old
Have a diagnosis of epilepsy. This is to be confirmed by the recruiting professional who will confirm via the participant's medical records.
Currently showing or reporting mild-moderate psychological distress: including anxiety, low mood or stress, in relation to their health condition, as identified by local clinicians recruiting to study.
Have access to a computer/internet enabled electronic device e.g. a tablet or mobile phone.
Presence of an Intellectual Disability. As this is a time limited intervention with a set protocol, there will not be opportunity to make adaptations to the intervention. Consistency across the participants is important to show any effect of the intervention.
Currently receiving any other mental health treatment in order to reduce extraneous variables from other mental health treatment.
Current report of self-harming behaviours as the research cannot monitor or manage risk.
Severe psychological distress e.g. depression, psychosis or an eating disorder, as this is likely to require specialist psychological support.