CureDuchenne Link®: A Resource for Research
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age4+
SponsorCureDuchenne
About this trial
CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).
Eligibility criteria
Qualifiers
Currently has a confirmed diagnosis of DMD/BMD based on genetic testing, muscle biopsy, or clinical diagnosis.
Currently has a confirmed diagnosis of carrier status for DMD/BMD based on genetic testing.
Parent/guardian (for minor participants) or participant gives informed consent and/or assent as required by local regulations.
Is age 4 weeks or older at the time of consent.
Disqualifiers
Is a foster child or ward of the state.
Is a prisoner.
Trial design
Treatments tested in this trial
- Not listed
Trial groups
5,000 Participants
are grouped into 2 trial groupsSponsors and collaborators
Source ClinicalTrials.gov