Data Collection Protocol for Patients With Von Hippel Lindau Disease

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorM.D. Anderson Cancer Center

About this trial

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

Eligibility criteria

Qualifiers

Presence of genetic confirmation or clinical criteria consistent with vHL disease.

Ability to understand and the willingness to sign a written informed consent document.

Disqualifiers

None

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

No trial groups listed

Sponsors and collaborators