This project will involve working with people with PCD and medical professionals to develop resources that will help patients and the people providing their care to better understand fertility and pregnancy safety in people with this condition.
Aged 18 years or older
'Highly likely' or confirmed diagnosis of Primary Ciliary dyskinesia, or being a healthcare professional, or representative from a stakeholder group e.g. patient led charity
Able to understand and willing to sign the informed participant consent prior to participation
Unwilling to participate in the study
Not meeting inclusion criteria
Unable to understand or unwilling to sign the informed participant consent prior to participation
University of Southampton
Lead sponsor
University of Cardiff
Collaborator
University Hospital Southampton NHS Foundation Trust
Collaborator