The goal of this interventional study is to learn about the impact of an intervention for health care providers that teaches individuation and perspective-taking (IPT) skills to enhance patient-centered communication in pediatric sickle cell disease (SCD). The main question it aims to answer is:
Does an intervention that teaches individuation and perspective-taking (IPT) skills to pediatric sickle cell disease (SCD) health care providers (HCPs) enhance patient-centered communication?
Researchers will compare the IPT intervention to a control group who will receive education about SCD pain management to see if the IPT intervention improves patient-centered communication.
Participants will complete baseline surveys and then be randomly assigned into the intervention or control group. After completing their assigned session (IPT training or education), they will be asked to complete the same surveys as completed at baseline.
Licensed health care provider (HCP) who provides care to youth with SCD
HCP employed by Connecticut Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia and primary work area is Hematology/Oncology
HCP who does not provide care to youth with SCD
HCP is a medical trainee, not including fellows
HCP not employed by CT Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia
Not fluent in English
Connecticut Children's Medical Center
Lead sponsor
National Heart, Lung, and Blood Institute (NHLBI)
Collaborator
Children's Hospital of Philadelphia
Collaborator
Yale-New Haven Children's Hospital
Collaborator