Diagnosis Disclosure Support for Caregivers of Children With Autism

Trial statusNot yet recruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age7-12
SponsorKorea University

About this trial

The purpose of this randomized controlled pilot study is to develop and evaluate an online diagnosis disclosure support intervention for caregivers of 7- to 12-year-old children with autism spectrum disorder (ASD) in South Korea. This intervention is designed to support caregivers who are contemplating, preparing for, or carrying out disclosure of their child's ASD diagnosis to the child. This study has three primary aims: (1) to evaluate the acceptability and feasibility of the intervention; (2) to examine clinically meaningful effects of the intervention on caregivers' psychological well-being and psychosocial adjustment (e.g., emotion regulation, loneliness/social isolation, and adaptation to life transitions), parenting competence and attitudes (e.g., parenting self-efficacy, parenting role satisfaction, and parenting stress), and autism-related knowledge and social perceptions (e.g., autism knowledge and perceived autism-related stigma); and (3) to assess whether the effects of the intervention are maintained one month after program completion.

Eligibility criteria

Qualifiers

Caregivers of children aged 7-12 (Grades 2-6) attending mainstream schools in South Korea

Caregivers of children with previous medical diagnosis of ASD

Caregivers with no prior experience of participation in diagnosis disclosure support programs

Caregivers in agreement with the need for a ASD diagnosis disclosure support intervention program, with commitment to continuous and sincere participation

Disqualifiers

Caregivers of children with significant intellectual disability

Caregivers of children with significant language delay

Trial design

Treatments tested in this trial

  • SHARE : Supporting Honest Autism Recognition and Education
  • One-session seminar

Treatment groups

40 Participants
are divided into 2 treatment groups

Locations

This trial has no locations

Sponsors and collaborators

Korea University

Lead sponsor

National Research Foundation of Korea

Collaborator