About this trial
The purpose of this randomized controlled pilot study is to develop and evaluate an online diagnosis disclosure support intervention for caregivers of 7- to 12-year-old children with autism spectrum disorder (ASD) in South Korea. This intervention is designed to support caregivers who are contemplating, preparing for, or carrying out disclosure of their child's ASD diagnosis to the child. This study has three primary aims: (1) to evaluate the acceptability and feasibility of the intervention; (2) to examine clinically meaningful effects of the intervention on caregivers' psychological well-being and psychosocial adjustment (e.g., emotion regulation, loneliness/social isolation, and adaptation to life transitions), parenting competence and attitudes (e.g., parenting self-efficacy, parenting role satisfaction, and parenting stress), and autism-related knowledge and social perceptions (e.g., autism knowledge and perceived autism-related stigma); and (3) to assess whether the effects of the intervention are maintained one month after program completion.
Eligibility criteria
Qualifiers
Caregivers of children aged 7-12 (Grades 2-6) attending mainstream schools in South Korea
Caregivers of children with previous medical diagnosis of ASD
Caregivers with no prior experience of participation in diagnosis disclosure support programs
Caregivers in agreement with the need for a ASD diagnosis disclosure support intervention program, with commitment to continuous and sincere participation
Disqualifiers
Caregivers of children with significant intellectual disability
Caregivers of children with significant language delay
Trial design
Treatments tested in this trial
- SHARE : Supporting Honest Autism Recognition and Education
- One-session seminar
Treatment groups
Locations
Sponsors and collaborators
Korea University
Lead sponsor
National Research Foundation of Korea
Collaborator