Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorMedstar Health Research Institute

About this trial

Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.

Eligibility criteria

Qualifiers

SMA diagnosis, age greater than or equal to 18 years

Disqualifiers

Deceased

Trial design

Treatments tested in this trial

  • Telephone Interview

Treatment groups

No treatment groups listed

Locations

1

Map coordinates are unavailable for these locations. Locations are shown below instead.

MedStar Health Research InstituteRecruiting20010, Washinton, District of ColumbiaUnited StatesUnited States