The goal of this clinical trial is to learn if a Person-Centred Care (PCC) intervention can improve the caregiving experience and wellbeing of families who provide home care for a loved one with advanced chronic illness. The main questions it aims to answer are:
* Does the PCC intervention improve families' caregiving experience, preparedness for caregiving, and psychological wellbeing? * Is the PCC intervention feasible and acceptable for implementation in primary care settings?
Researchers will compare families who receive the PCC intervention in addition to usual care to families who receive usual care alone.
Participants will:
* Take part in an initial in-person consultation with a primary care nurse to share their family caregiving experience and co-create a personalized health plan. * Have monthly follow-up contacts with the same nurse over a 3-month period to update and adapt the plan. * Receive a copy of the updated plan after each contact to guide caregiving and support decision-making.
Diagnosis of an advanced chronic disease, such as chronic heart failure (NYHA functional class IV), renal failure (stages 4-5), chronic obstructive pulmonary disease (COPD) (grades 4-5 on the MRC scale), or liver failure.
Not currently receiving care from a specialized palliative care team.
Habitual residence in their own home or that of a family member, without requiring permanent hospitalization.
Actively providing care at home to an adult with advanced illness at the time of the study.
Life expectancy of less than one year
Families experiencing an acute crisis situation (e.g., recent bereavement, severe family conflict).
Clinica Universidad de Navarra, Universidad de Navarra
Lead sponsor
University of Navarra
Collaborator
Navarre Health Research Institute (IdiSNA), Spain
Collaborator
Göteborg University
Collaborator
Departamento de Salud del Gobierno de Navarra
Collaborator