About this trial
Spastic ataxias are a group of diseases causing symptoms such as walking difficulties and balance impairments that lead to a high risk of falls. No pharmacological treatments exist to treat these diseases. Unfortunately, little effort is made to develop non-pharmacological treatments specific to spastic ataxias despite the detrimental impact of the disease on several aspects of an individual's life and the high cost of falls for society each year. The three objectives of this project are: 1) to determine the effect of a 12-week rehabilitation program on disease severity as compared with usual care for individuals with spastic ataxias; 2) to identify which factors can help (or not) the implementation of the program in the clinical settings ("reel world"); and 3) to explore the cost-benefits of IMPACT \[rehabIlitation prograM for sPAstiC aTaxias\]. The team has developed the program to specifically target symptoms present in these patients and was previously pilot-tested. Based on the results obtained in this pilot project, positive effects are expected concerning the disease severity of participants. The investigators want, with this project, provide to health care professionals an option to offer better-suited services to people living with spastic ataxia worldwide.
Eligibility criteria
Qualifiers
have a confirmed genetic diagnosis of ARSACS or SPG7
be able to maintain standing position and to transfert
be authorized by their treating neurologist
speak French or English
Disqualifiers
have active participation in a rehabilitation program (self-reported information)
have another condition causing physical limitations
be uncomfortable in a swimming pool
be pregnant.
Trial design
Treatments tested in this trial
- IMPACT - rehabIlitation prograM for sPAstiC aTaxias
Treatment groups
Sponsors and collaborators
Laval University
Lead sponsor
McGill University
Collaborator
Université de Sherbrooke
Collaborator
Université du Québec a Montréal
Collaborator
University of Calgary
Collaborator
Corporation de recherche et d'action sur les maladies héréditaires (CORAMH)
Collaborator
Cégep de Jonquière
Collaborator
Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-St-Jean
Collaborator
Muscular Dystrophy Canada
Collaborator
University of Alberta
Collaborator
Integrated University Health and Social Services Center of the Capitale-Nationale
Collaborator