ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
ConditionAcute Hepatic Porphyria
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age12+
SponsorAlnylam Pharmaceuticals
This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.
Documented diagnosis of AHP, per physician's determination
Currently enrolled in a clinical trial for any investigational agent