Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age18-39
SponsorDana-Farber Cancer Institute

About this trial

This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS).

The name of the intervention used in this research study is:

Nest portal (electronic platform for patients and clinicians)

Eligibility criteria

Qualifiers

Ages 18-39 years, inclusive.

Has had previous cancer genetic testing, with a finding of a pathogenic variant or VUS; patient has previously received results from the clinical team.

English-speaking and -reading.

Receiving care at DFCI.

Disqualifiers

None

Trial design

Treatments tested in this trial

  • Nest Platform

Treatment groups

40 Participants
are divided into 2 treatment groups

Sponsors and collaborators