Epidemiological Data on Mast Cell Pathologies in France
ConditionMast Cell Disorder
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorImagine Institute
About this trial
Mast cell disorders constitute a heterogeneous group of diseases, including :
* mastocytosis, i.e. cutaneous, indolent and severe forms of the disease, such as aggressive mastocytosis and mast cell leukemia) ; * mast cell-associated diseases such as mast cell activation syndrome (idiopathic, secondary or clonal), affecting both children and adults.
No epidemiological data are currently available in France.
In France, medical care of mast cell disorders is mainly provided by a rare disease network (CEREMAST), whose CRMR is located at the Necker Enfants Malades hospital in Paris. A total of 20 centers are located throughout France.
Our aim is to use this network to study patients suffering from these diseases. The overall aim of the study is to improve the understanding, diagnosis, prognosis, recognition and management of patients with mastocytosis.
Eligibility criteria
Qualifiers
Children from birth and adults of any age
Mastocytoses (cutaneous, systemic and sarcomas) Defined according to the WHO 2016 classification
Mast cell activation syndromes (idiopathic, secondary and clonal)
Other mast cell activation disorders (MCAD-NOS), Defined according to the Vienna classification
Disqualifiers
None
Trial design
Treatments tested in this trial
- Not listed
Trial groups
13,000 Participants
are grouped into 1 trial groupSponsors and collaborators
Source ClinicalTrials.gov