Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorInstitut de Myologie, France
About this trial
Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.
Eligibility criteria
Qualifiers
Age ≥18
Confirmed diagnosis of autoimmune MG
Shortness of breath in daily life: score 1 or 2 on the respiration item on the MG- activities of daily living score
Signed consent form
Disqualifiers
Known Pregnancy
Known respiratory disorder (other than MG)
Recent (within past 4 weeks) respiratory infection
Current MG crisis or exacerbation (necessitating increase in MG medication &/or hospital admission)
Trial design
Treatments tested in this trial
- Not listed
Trial groups
No trial groups listed
Sponsors and collaborators
Institut de Myologie, France
Lead sponsor
APHP
Collaborator
Source ClinicalTrials.gov