Healing ALS Registry Observational Study (HAROS)

ConditionsAmyotrophic Lateral Sclerosis (ALS)Motor Neuron Disease (MND)Primary Lateral Sclerosis (PLS)

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

Age18-110

SponsorHealing Advocates Registry and Ministry

About this trial

This is a prospective, observational, online study of people diagnosed with ALS, MND or PLS referred to as HAROS (Healing ALS Registry Observational Study). Participants will enter information into an online ALS registry once per month, including their ALSFRS-R data, certain other symptoms, dietary intake, supplements, medications and other therapies, both conventional and integrative. Participants will also enter the hours spent on optional self-study and free online education. The investigators will assess the effectiveness of various therapies and education by measuring physical outcomes.

Eligibility criteria

Qualifiers

Diagnosed with ALS, MND or PLS

Disqualifiers

Smokers

Trial design

Treatments tested in this trial

Education about treatment options
Dietary Supplements: Vitamins, Minerals, Herbs, etc.
Meditation, Prayer, Talk Therapy, Affirmations, Journaling, etc.
Diet, various diets will be observed
Exercise, physical therapy, occupational therapy, speech therapy, sauna, EMS, massage and other therapies
ALS medications and other medications
Physical and emotional support

Treatment groups

1,000 Participants

are divided into 4 treatment groups

Sponsors and collaborators

Healing Advocates Registry and Ministry

Lead sponsor

Source ClinicalTrials.gov