About this trial
The purpose of this study is to work with patients diagnosed with end-stage liver disease to understand their perspectives on the Health at Home (H@H) Program, including desired outcomes and expectations, perceived barriers, and drivers. H@H is an emerging model of home-based care, designed to extend traditional, inpatient hospital care which may address these needs. Through H@H, acute medical care services as well as ancillary care such as rehabilitation therapy can be delivered in the home. The study is divided into three phases: Phase 1 occurs while the participant is an inpatient. Phase 2 is when the actual H@H program takes place as part of the participant's clinical care. The study team will not be involved in the Phase 2 - H@H program as it will be conducted by the clinical staff. Phase 3, at which point the participant enters a rehabilitation phase to transition the patient to self-management, involves a research jam session with the participant and caregiver to assess the value of the program.
Eligibility criteria
Qualifiers
Enrolled into IUH's H@H program
At least 18 years of age
Chronic liver disease/cirrhosis based on characteristic clinical, laboratory, and imaging findings
English speaking
Disqualifiers
Unable to complete study questionnaires due to neurocognitive disease, legal blindness or hearing loss
Transplant of organ other than liver
Pregnant
Incarcerated
Trial design
Treatments tested in this trial
- Indiana University Health Hospital at Home Program