HRQoL and Financial Toxicity in Patients With VEXAS Syndrome
ConditionVEXAS
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18-99
SponsorGruppo Italiano Malattie EMatologiche dell'Adulto
About this trial
This multicenter cross-sectional observational study aims to describe health-related quality of life (HRQoL) and symptom profiles of patients with VEXAS syndrome.
Eligibility criteria
Qualifiers
Adult patients (≥ 18 years old) with a confirmed diagnosis of VEXAS syndrome (UBA1 pathogenic mutation detected)
Written informed consent
Disqualifiers
- Having any kind of psychiatric disorder or major cognitive dysfunction.
Not able to read and understand local language
Trial design
Treatments tested in this trial
- Not listed
Trial groups
100 Participants
are grouped into 1 trial groupSponsors and collaborators
Source ClinicalTrials.gov