The theory-informed digital health intervention, called as "Empower My Congenital Health (EmpowerMyCH)" aims to activate and engage ACHD patients in building confidence toward navigating the adult healthcare system. This tool is built after incorporating the theories of behavior change, gathering inputs from target patients in all stages of its design and implementation. The key features of the tool include a digital medical passport, updated congenital information, community support, and patient stories and advice. The investigators aim to test the acceptability, feasibility, efficacy, and effectiveness of the intervention.
have congenital heart disease
18 years or older
can sign the informed consent
developmentally delayed
unable to consent
University of California, San Francisco
Lead sponsor
National Heart, Lung, and Blood Institute (NHLBI)
Collaborator